Statements, Resources and Information for the Genetic Support Sector:
Rare Voices Australia (RVA) has released this statement, which has been developed in conjunction with our Scientific and Medical Advisory Committee following the COVID-19 press release issued by EURORDIS on 31 March 2020.
RVA is calling for the urgent development and use of critical care guidelines for people living with a rare disease to inform Australian hospitals and clinicians during the COVID-19 pandemic.
The statement has been sent to all State Chief Health Officers and will be distributed to all of RVA’s rare disease contacts at a state level, the Chief Medical Officer for the Australian Government, the Hon Greg Hunt MP’s office, the National COVID-19 Clinical Evidence Taskforce and other strategic partners.
About the HSHPIC COVID-19 Response Group Meeting
During these unprecedented times, vulnerable communities are at higher risk of illness, poverty, violence and disadvantage and the community sector is facing high demand, and workforce, safety and sustainability challenges.
VCOSS and DHHS have agreed to bring together community sector peak bodies and government in an expanded HSHPIC to strengthen engagement and planning around the COVID-19 response and recovery.
The HSHPIC COVID-19 Response Group is meeting fortnightly. A meeting summary will be published following each meeting.
What was discussed this week?
Personal Protective Equipment
Requests for Personal Protective Equipment (PPE) are now centrally managed and triaged by the DHHS.
Requests for PPE can be made by residential care providers, Supported Residential Services providers, disability group homes, crisis and congregate residential homelessness services and other care settings.
Access to PPE is still being prioritised for facilities, programs and carers where there has been a confirmed case of COVID-19 or there is a reasonable likelihood someone will test positive, although supply is increasing. PPE is generally not being released for precautionary purposes.
State Relief and Recovery Team update
The State Relief and Recovery Team is meeting multiple times each week. They have identified key principles for recovery and most-affected cohorts, and are putting in place a coordinated and staged approach to recovery activities and programs. Key relief activities they are planning for include:
· Emergency Food Relief
· Psychosocial Support and Outreach
· Health and Medical
VCOSS is working with the State Relief and Recovery Team, and will work with the emergency relief sector more broadly, to develop a model for food relief that recognises the existing capacity and capabilities, and supports the sustainability, of the emergency relief sector.
This will help to prevent duplication, leverage the skills, assets and resources of existing emergency relief organisations, utilise the local relationships, networks and trust that these organisations enjoy, and support the sector in a time of crisis.
Update on accommodation
DHHS are working to address two broad accommodation issues including:
· When people in the community are exposed to COVID-19 and cannot safely self-isolate in their current accommodation without posing an infection risk to other household members or care workers; or if carer is diagnosed or exposed and can no longer provide a care placement for a period of time.
· To help people whose accommodation options are impacted by the social restrictions including rough sleepers, and addressing an anticipated spike in family violence incidents.
Work is also underway to plan for further contingencies if more widespread outbreaks occur and sector contingency plans are unable to meet demand.
Several major announcements were made in the last week, related to pop-up facilities for people experiencing homelessness, short-term accommodation for people escaping family violence and hotel accommodation for healthcare workers exposed to COVID-19.
DHHS acknowledged there were existing pressures on housing and accommodation supply before the COVID-19 emergency, and the recent announcements about emergency accommodation will not resolve these longer-term structural challenges.
Overview of the impact of the announcement of the Crisis Council of Cabinet
DHHS advised a Crisis Council of Cabinet (CCC) has been established by the Premier as the core decision making forum for the Victorian Government on all matters related to the coronavirus emergency, including implementing the outcomes of the National Cabinet.
Eight core coordinating mechanisms have been put in place across government. These include:
1. Heath emergency
2. Economic emergency
3. Economic program delivery, supply, logistics and procurement
4. Continuity of essential services (people)
5. Continuity of essential services (economic)
6. Economic recovery (private sector)
7. Restoration of public services (people)
8. Restoration of public services – economic (public sector).
These mechanisms are each being led by a Departmental Secretary. Associate Secretaries have been appointed to manage the day-to-day administration of departments.
Advice on the status of contracts lapsing June 30, 2020
Many services have contracts lapsing at the end of June. The Department of Treasury and Finance provided an update on the budget process. Given the State Budget has been tentatively rescheduled to October, a six-month Supply Bill that provides authority for government spending in the interim period between 30 June 2020 the commencement of the State Budget is due to be considered by Parliament next week.
Subject to the six-month Supply Bill is passed by Parliament, government will provide advice on funding for relevant lapsing contracts.
In the meantime, community organisations should speak with their DHHS Sector Leads about which contracts are impacted.
Working for Victoria update (not discussed at the meeting)
The Working for Victoria Fund is a job creation program. It is designed to help workers who have lost jobs as a consequence of COVID-19 – and other Victorians seeking work – to find new opportunities in critical roles supporting the community.
Community sector organizations can now register job opportunities on the Working for Victoria website. They will then be matched with job seekers who fit their requirements. The Victorian Government will pay each worker’s salary plus on-costs for six months.
About 20,000 Victorians have now registered as job seekers.
Some large organisations have already been directly invited to submit proposals, but others can do so at any time.
VCOSS can help community organizations identify and design job opportunities. VCOSS will also work with community sector peaks to identify sector-specific and cross-sector opportunities.
Education system update
Term two commenced yesterday. The key message to families is if children can learn from home, they must learn from home. About 3% of students attended school on-site yesterday.
The Department of Education and Training recognised it is important that some children be able to attend if they are at risk when at home. They are working to support regions and schools to identify children who might be facing elevated risk of violence and abuse at home.
Schools have also been working hard to identify need for devices at home. There is a priority of access list, including children in out of home care, in youth justice and year 11 and 12 students experiencing economic disadvantage.
Tailored advice is being developed for specialist schools.
Links and resources and information
The DHHS Funded Agency Channel is a central source of information. It includes new information about:
· During the COVID-19 emergency, DHHS will adopt a flexible approach to monitoring funded agencies
· Changes to COVID-19 testing criteria that apply to community services staff and clients
You can learn more about HSHPIC here.
- Information about your health – Healthdirect Australia
- Information about Coronavirus – Australian Department of Health
- Information for the health sector – Australian Department of Health
- Coronavirus disease – World Health Organisation
- Making sense of Covid-19 – information for HIV and LGBTIQ communities on COVID-19 (AFAO)
- Everything you need to know about coronavirus COVID-19 – ABC (March 4)
- Stay up-to-date about Coronavirus – ABC Coronavirus hub
- Podcast – Chronocast – podcast by Dr Norman Swan
- DHHS – Coronavirus website
- People with Disability Australia
- NDIS and Disaster Response
- World Health Organisation
- Head to Health
- Video consultation guide for GPs by Professor Trish Greenhalgh
- Staying connected – so doctor and consumer know best
- Telehealth Guide For Consumers
- Quick Guides for Telehealth
- Principles for the COVID-19 Tracing App
C19Journals Research Project
Do you have a Genetic, Undiagnosed or Rare Disease?
Do you care for someone with a Genetic, Undiagnosed or Rare
Are you part of a Support Group for people with a Genetic,
Undiagnosed or Rare Disease and their carers?
If you answered yes to any of these questions, we would like to hear from
If you would like to know more please contact:
Ph: (03) 8341 6315
Dr. Stephanie Best, Senior Research Fellow, Murdoch Children’s Research Institute
Monica Ferrie, Chief Executive Officer, Genetic Support Network of Victoria
This study has ethical approval from the Royal Childrens Hospital, study number 63821