Resources for families and individuals

At the GSNV we are very aware of the challenges of finding reliable resources. We know that the community has access to a lot of information on genetics, genomics and services they can access, through the internet. However we also know that there are a number of issues with the information available; firstly it can be difficult to navigate the multiple websites that house these tools and resources and secondly and most importantly it can be very challenging to distinguish whether the information provided is useful and reliable.

To make navigating online resources easier we have developed THE GENETIC LINK. The Genetic Link is on-line repository which houses a wide selection of accessible, useful and reliable resources for people impacted genetic, rare and undiagnoised conditions, and those who support them – support groups, carers, health professionals and the general community. 


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