Our Advocacy Principles

We are committed to ensuring the collective voice is heard. Our advocacy principles were developed in collaboration with our sector. 

These principles are:  

  • Support as an indispensable component of an inclusive health and wellbeing system jointly considered in practice, planning and policy development
  • Access and equity for all – of information, of expertise, of care, of consideration, in research, in environment and in all things
  • Recognition and action to build mental strength for people with genetic conditions and those who support them
  • The Importance and recognition of identity and individuality in care, decision making and support – Differences are of value
  • The right to Knowledge, Education and Information for decision making and choice
  • A collaborative approach from State and National organisations
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