It can sometimes be tricky to know where the right place to go for healthcare and support when you either have or are suspected to have a genetic condition. At the GSNV we believe that there are three areas that help you navigate the health system when living with a genetic condition.
A good place to start is to visit a clinical genetics service. Clinical genetics services are medical services that specialise in genetics. These services are staffed by Clinical Geneticists and Genetic Counsellors.
There are a range of clinical genetics services as well as support services for those impacted by genetic conditions throughout Victoria.
Clinical genetics services are medical services that specialise in genetics. These services are staffed by Clinical Geneticists and Genetic Counsellors.
For a listing of Clinical Genetics Services in Victoria click here.
To be seen by a clinical genetics service you will need a referral click here for more information on how to be referred.
Sometimes people find it helpful to speak with others with a similar experience. Support groups are often able to provide this service as well as helping with practical condition specific information.
Community services can be very useful when either managing you own condition or when you are caring for a family member or a friend. In Victoria we have many great support services however that sometime can be challenging to find the Community services that you need.
The Genetic Link is an on-line repository which lists a wide selection of useful and reliable support services such as disability services, advocacy services, government agencies, and respite.