Our committee meets on a monthly basis and in accordance with our rules and principles of incorporation makes important decisions on how our organisation is run and how we provide our services.
Our committee is attended by Executive and general committee members who have been formally elected at the Annual General Meeting.
In Accordance with the CONSUMER AFFAIRS VICTORIA, Associations Incorporation Reform Act 2012 the GSNV has opted to adopt the model rules for and Incorporated Association per the Associations Incorporation Reform Regulations 2012. The new model rules provide the basic structure and guiding rules for the GSNV Inc and when and where necessary the GSNV Committee will suggest and develop rule changes and amendments to the general rules. The Genetic Support Network Victoria RULES can be viewed here.
Our board membership is skilled based and regularly reviewed. Expressions of interest can be placed through our contact us page.
Vice President: Rebecca Purvis
Rebecca Purvis is an Associate Genetic Counsellor who works at The Parkville Familial Cancer Centre, providing genetic counselling to families with, or at risk of, inherited cancer predisposition syndromes. Rebecca undertook a Bachelor of Science majoring in Genetics and a Postgraduate Diploma in Health Sciences majoring in Bioethics at the University of Otago in New Zealand. She went on to complete her Masters of Genetic Counselling at Arcadia University in Philadelphia, sponsored by a Fulbright New Zealand Science and Innovation Graduate Scholarship. Whilst there, Rebecca conducted a thesis project exploring how parents of children with rare, multi-system developmental disorders perceive genetic testing, and what factors influence their experience with, and uptake of, genetic health services. Upon graduating, Rebecca was awarded the Tracy M. Gardner Award for Excellence in Genetic Counselling and the A. Richard Polis Graduate Scholarship Award for the graduating class.
Rebecca has previously worked as an assistant for the Honours program at Arcadia University, developing academic mentoring and scholarship assistant programs. Prior to moving to America, Rebecca worked for the New Zealand Ministry of Education, specialising in sector communication and training and counselling support for school administrators. She has been involved in multiple non-profit initiatives including Give Kids Sight, The Kelly Ann Dolan Memorial Foundation, Youthline and the New Zealand Cancer Society Relay for Life. Rebecca is passionate about community engagement with genetics and has long-term interests in improving education and access efforts so that genetic health services are integrated effectively within the public health sector. Over the next few years she is looking to complete further research investigating how genetic counselling impacts a family’s feeling of empowerment with the overarching aim being the continued improvement of service delivery. Rebecca hopes that her background and interest areas will contribute to the GSNV’s core mission.
Treasurer: Rachel Pope-Couston
I graduated from the Melbourne Master of Genetic Counselling in 2014 and I am currently working as an Associate Genetic Counsellor with the Tasmanian Clinical Genetics Service. Genetic counsellors undertake an extensive certification process that I will complete this year, which will make me a Certified Genetic Counsellor. I have been a committee member and the Treasurer of the GSNV since 2013 and it has been a joy to be part of the growth and evolution of the GSNV over the past 6 years. I come from a family that all works in healthcare in one form or another and where we are all passionate about advocacy and making sure that every person is represented and respected. I came to genetic counselling a bit later in life after a number of experiences convinced me it was what I really wanted to be doing. I believe that genetics (and now genomics) has the ability to empower individuals and families, but that people often need support to access and utilise the benefits, which is why I am so pleased to be a committee member, and Treasurer, for the GSNV.
Secretary: Anna Jarmolowicz
Anna Jarmolowicz is an Associate Genetic Counsellor employed through the Victorian Clinical Genetics Services. She provides genetic counselling to patients of the Royal Children’s Hospital and those undergoing exome sequencing as part of the Melbourne Genomic Health Alliance demonstration project. Anna has a Bachelor of Health Science, majoring in Genetics and Public Health, and a Graduate Diploma in Counselling. Anna has previously worked as a Research Assistant at a not-for-profit organisation with a focus on neurodegenerative conditions.
Anna completed her Master of Genetic Counselling at the University of Melbourne, which included a thesis exploring how parents told their children that they were conceived using preimplantation genetic diagnosis. During this time she also worked at the Genetic Support Network of Victoria, providing support and information to individuals, families and support groups. Anna has an in-depth understanding of the role of the GSNV and the community it sits within and serves. She is passionate about advocating for individuals and families impacted by genetic conditions, especially for access to timely diagnosis and treatments. She hopes she can make a positive impact to the genetic and rare disease community through her contributions to the GSNV committee.
General Committee Members:
Lucas has just recently graduated with a Bachelor of Science from Monash University, majoring in Genetics and minoring in Developmental Biology. From this, he has now gone onto studying the new Master of Genetic Counselling program at the University of Technology Sydney (UTS). Lucas has a strong interest in genetics and embryology, but also loves being able to interact and support different likes of people the genetic counselling profession offers. He hopes to be able to work as a genetic counsellor in prenatal or cancer genetics. Overall, he is fascinated with the advancements of genetics in the last few years and the ethical and communication challenges that have arisen from it. He is passionate to contribute to the community and raise awareness about genetics in the public. Lucas brings an alternative perspective not only as a student, but also, as a volunteer, having volunteered at various organisations associated with the GSNV and Leukodystrophy Australia.
Chris is a program manager within the Infection and Immunity theme at the Murdoch Childrens Research Institute. He provides strategic advice and support to clinical paediatric researchers at MCRI and guides a programmatic research stream into antibiotic use and misuse in children. Chris completed his PhD at Monash University in molecular and animal model genetics in 2015. His thesis focussed on understanding the mechanisms of dietary and systemic zinc homeostasis using the model organismDrosophila melanogaster.Following this, he worked as a Regulatory and Research Development officer for a start-up biotech company developing novel treatments and diagnostics for use in animal & human health.
Chris is a volunteer with the GSNV and regularly contributes content to the newsletter and is a supporting member of the Lived Experiences Advisory Group. He is passionate about science communication and the issues associated with the rapid advances in genomic and genetic testing. He is particularly interested in the ethical dilemmas surrounding direct to consumer testing and ensuring consumers and patients understand the results of genetic testing and can make informed decisions. With a strong scientific background, Chris hopes to provide an alternative perspective on the GSNV committee as it moves forward to tackle the challenges of the genomics era.