Our Vision
People living with genetic, undiagnosed and rare conditions flourish and live their best lives.
Our Mission
Champion the long-term sustainability and value of support strategies and systems including genetic, undiagnosed and rare disease patient support groups.
Build stakeholder capacity to improve engagement and collaborative outcomes.
Be an enabler of a collaborative and connected support sector voice to explore issues/opportunities and co-design strategies and solutions.
Listen and learn from people living with GUaRD and their families and support groups to represent, lead and advocate for positive change.
Our Values
Fairness and Equity
We believe that every individual has an equal right to access information and services that impact the possibility and potential to live their life.
We believe in equal opportunity to make an informed choice and to have that choice supported.
Empowerment
We strive to educate and inform people to empower informed decision making
We seek opportunities to provide the voice of lived experience
We build capacity by developing and delivering education and support strategies
Respect
We believe in the possibility and potential of all life
We respect choice and the right to choose
We seek diverse opinions and approaches
We listen and learn from lived experience
Integrity
We are ethical, tolerant and strive to deliver
Connectedness
We collaborate for outcomes
We engage with communities to learn
We provide opportunities for people to network
We share lived experience
We link people to resources and support