Our Vision and Mission

Our Vision

People living with genetic, undiagnosed and rare conditions flourish and live their best lives.

Our Mission

Champion the long-term sustainability and value of support strategies and systems including genetic, undiagnosed and rare disease patient support groups. 

Build stakeholder capacity to improve engagement and collaborative outcomes. 

Be an enabler of a collaborative and connected support sector voice to explore issues/opportunities and co-design strategies and solutions. 

Listen and learn from people living with GUaRD and their families and support groups to represent, lead and advocate for positive change. 

Our Values

Fairness and Equity

We believe that every individual has an equal right to access information and services that impact the possibility and potential to live their life.

We believe in equal opportunity to make an informed choice and to have that choice supported.


We strive to educate and inform people to empower informed decision making

We seek opportunities to provide the voice of lived experience

We build capacity by developing and delivering education and support strategies


We believe in the possibility and potential of all life

We respect choice and the right to choose

We seek diverse opinions and approaches

We listen and learn from lived experience


We are ethical, tolerant and strive to deliver


We collaborate for outcomes

We engage with communities to learn

We provide opportunities for people to network

We share lived experience

We link people to resources and support

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