Helping individuals and families to find appropriate services and connect with others is the core of GSNV’s day-to-day activities.
The GSNV often receives phone calls and emails from individuals and family members in many different situations. These can include individuals with a newly diagnosed condition looking for information, people who have been living with a condition for many years and require additional help, or families where a diagnosis has not yet been reached.
If you, or someone you know, needs assistance regarding a genetic condition please contact us to see if we can help.
If you are looking for useful resources or tools visit our Resources for Families and Individuals page.
Sometimes people find it helpful to speak with others with a similar experience. If this is something you are interested in, you can visit our list of support groups, or contact us to see if we can put you in touch with someone.