Monica Ferrie
Chief Executive Officer
I’m inspired by potential and possibility, for individuals, teams and community. My work is targeted to discover, facilitate and achieve them both in a number of capacities.
I am the GSNV Chief Executive in a part-time capacity which allows me to also be the Director of Bold and Brave Consulting and Toilet Training Educators, Treasurer of the Balibo House Trust, Honorary Fellow of Melbourne University and member of the Central Queensland University Regional Engagement Committee.
Experience in senior leadership roles in Government, Education, the private sector, international projects, and education including a Masters of Business Administration and a commitment to community, provides a foundation for making a difference across a range of sectors.
Daniele Noel
Communications & Volunteer Coordinator
Daniele brings diverse and well-rounded professional expertise in the health and ageing sector. Coupled with postgraduate qualifications in Management, Marketing and Strategic Communications, Daniele delivers strategy and implementation across branding, advocacy communications and digital marketing and communications. Her creative talents are complemented by diligent research, stakeholder engagement, the application of principles of health literacy and amplifying the lived-experience of diverse health consumers.
Since 2023, Daniele has implemented communication strategies and activities that support the GSNV’s advocacy initiatives and centres the voices of people living with genetic, undiagnosed and rare diseases to influence advocacy and change.
Malavika Vasanth
Policy & Projects Coordinator
As our Policy and Project Coordinator, Malavika designs and implements inclusive strategies and tools to ensure the GSNV is equipped to lead and offer engaging, inclusive resources and strategies for the GUaRD community.
Malavika has developed the GSNV’s inclusive language guides and a range of workshops to build the capacity of support group leaders in the area of diversity and inclusion.
Susie Roczo-Farkas
Research Project Officer – LINEAGE
Susie is a Project Officer at GSNV, drawing on her lived experience of AuDHD, rare conditions, and navigating healthcare, disability and aged care systems as a parent and carer.
She is a Project Lead on the LINEAGE Study, a national initiative exploring how genomic data is used, shared and protected across healthcare and research. Susie established the LINEAGE–GUARD Community Advisory Group to embed community perspectives directly into the study and its outcomes.
Susie sees her role as a facilitator, creating opportunities for individuals, families and communities to connect with health stakeholders across their healthcare journeys, supporting mutual learning so perspectives and priorities inform decisions that affect people’s care.