Chief Executive Officer
I’m inspired by potential and possibility, for individuals, teams and community. My work is targeted to discover, facilitate and achieve them both in a number of capacities.
I am the GSNV Chief Executive in a part time capacity which allows me to also be the Director of Bold and Brave Consulting and Toilet Training Educators, Treasurer of the Balibo House Trust, Honorary Fellow of Melbourne University and member of the Central Queensland University Regional Engagement Committee.
Experience in senior leadership roles in Government, Education, the private sector, international projects, education including a Masters of Business Administration and a commitment to community provide a foundation for making a difference across a range of sectors.
What I’m good at:
My work has allowed me to develop many skills over the years and I continue to utilise these and build more:
- Business Mentoring
- Strategic Planning
- Facilitation and Training
- Decision Making and Problem Solving
Things I love to do:
- Spend time with my family – I have two sons and a large family.
- Hiking – I’ve done part of the Camino, The Overland, Three Capes, Routeburn, The Heafy…
- Scuba Diving – I’ve dived in Australia, Phillipines, Timor-Leste and Vanuatu.
- Anything to do with the ocean – looking at it, being in it, under it, on it
- All Sports – Love the Bombers, Cricket, Tennis, Soccer – watch a lot and should play more!
- Working in Emerging Countries – I’ve been involved in Timor Leste for years and love working with the challenges of emerging countries.
- Travel – So many places to go……
Louisa Di Pietro
Education and Advocacy Consultant
Louisa Di Pietro is the former Group Leader of the Genetic Support Network of Victoria (GSNV) and currently holds the education and advocacy strategy advice portfolio. Louisa is an experienced researcher and educator with a particular interest in the testing and diagnosis of genetic and rare conditions, the psychosocial impact of diagnosis on individuals and families and the delivery of ethical medical services in a genomics era. Louisa is actively involved in professional and community engagement and sits on numerous professional boards and advisory groups within the genetic health space. Louisa also employs her professional and ‘lived’ experience/knowledge of managing a genetic condition to assist in the continuum of care delivered to Australians and in linking them in with specialised support/services and assisting advocacy efforts. Her current work also focuses much on the training and exposure of genetic health professionals to the ‘psychosocial impact and personal stories’ behind a diagnosis and living with a genetic condition, the understanding of patient needs and expectations in an increasingly sophisticated genetic services environment, equity of access and the ethical application of new and emerging health technologies.
Louisa was in 2017 inducted into the Department of Health and Human Services Lifetime Achievement Honour Roll for services to the community. Honorary Academic – University of Melbourne
- Life Time Achievement Honours Roll – DHHS
- Working Group – Genomics Health Future Mission Steering Committee – Ethics Legal and Social Issues (ELSI)
- Member – Melbourne Genomics Health Alliance (MGHA) Consumer Advisory Group (CAG)
- Carrier Screening Reference Group – Cystic Fibrosis Victoria
- Lay Committee Member – Royal College of Pathologists of Australasia
- Honorary Member – Italian Society of Human Genetics (SIGU)
- Member – Human Genetics Society of Australasia (HGSA) and SIG
- Former Group Leader – GSNV
- Former Coordinator – Thalassaemia and Sickle Cell Society of Victoria
- Former member – Human Genetics Society of Australasia, Education Ethics and Social Issues Committee
- Former Committee member – Human Genetics Society of Australasia, Tas/Vic Branch
Genetic Support and Education Coordinator
I am the Genetic Support and Education Coordinator at the GSNV. I have been working in this role, part time, for about 4 years now. I trained as a genetic counsellor and I love how this role allows to use my skills in different capacities. I am passionate about helping people understand how genetic health may important to them and how it may impact their lives. I am a big believer in providing people with accurate information that they can then take away and make the right decision for themselves.
As I work part time at the GSNV, I also work with the Australian Genomics Health Alliance as the Victorian Project Coordinator. I find that I can bring a lot of the skill and knowledge that I have gained from the GSNV to my Australian Genomics role which is very beneficial in research.
Things I love to do:
- Eating- hence the cooking
- Spending time with my family and friends
- Travelling – I have done quite a bit of travelling over the years but my list of place I want to go keeps getting longer!
- Crafting- I always have a project of some sort on the go.
- Going for walk with my dog- She is a black lab and she is adorable
- Watching trashy reality TV shows
- Australian Genomics Community Advisory Group
I have worked in the mental health sector internationally, from not-for-profits in Dublin, Ireland to hospitals in Austin, Texas for the past 11 years. After beginning my career as a Psychology PhD Program Coordinator at University of Central Florida in the United States (where I’m originally from), I commenced my Masters in Youth and Adolescent Behavioural Health completing it in 2017. Work with Anglicare in the Eastern Region of Melbourne ignited an interest in the field of genomic health and its impact on individuals, families and communities.
I am committed to community engagement, listening and learning to connect people with the support they need and deserve. I bring my interest and experience in research and evaluation to inform and impact services, strategies, communications and delivery of programs, projects and goals at both the Genetic Support Network of Victoria as a Project Assistant, as well as a Research Coordinator for the Centre of Research Excellence in Cerebral Palsy at MCRI. At the Genetic Support Network of Victoria, I get to build on my ability to create, learn, adapt, and manage between the many exciting and competing tasks that we have every day as an organisation.
Things I love to do:
- Eating, cooking, and sharing recipes
- dancing, especially tap dancing!
- Travelling, mostly between here and the United States and Germany most often as they are both places I call home
- Watching movies, Wes Anderson and Tim Burton are my favourite
- Listening to music, classic rock and shoegaze bands
- reading and learning new things!
I work voluntarily as the co-founder and Director of UsherKids Australia. I am a fierce advocate for early diagnosis of Usher syndrome through genetic testing, the education of clinical professionals as well as support for families around the country to share research and information about the current generation of USH kids. I divide my time between work at the Genetic Support Network of Victoria, volunteering for UsherKids Australia, Paediatric Vision Impairment Alliance and is also on the Board at Genetic Cures Australia (www.geneticcures.com.au), a charity I established with my husband to further accelerate Australian research and therapies for genetic conditions such as Usher syndrome.