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About
Our Strategic Plan
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Annual Report
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October Practical Wellness Month 2023
Rare Disease Day 2023
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Navigating the health system
Mental Health
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Patient Pathways Program
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Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
Menu
About
Our Strategic Plan
Our Vision and Mission
Our Advocacy Principles
How we can help you
Our Committee
Annual Report
Our Team
Become a Member/Donate
Events
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Patient Pathways Program
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
About
Our Strategic Plan
Our Vision and Mission
Our Advocacy Principles
How we can help you
Our Committee
Annual Report
Our Team
Become a Member/Donate
Events
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Patient Pathways Program
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
Menu
About
Our Strategic Plan
Our Vision and Mission
Our Advocacy Principles
How we can help you
Our Committee
Annual Report
Our Team
Become a Member/Donate
Events
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Patient Pathways Program
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
Patient Registries
Friedreich’s Ataxia Research Alliance Patient Registry
May 9, 2022
Read More »
Familial Cancer Registry
May 9, 2022
Read More »
DS-Connect: The Down Syndrome Registry
May 9, 2022
Read More »
Congenital Muscle Disease International Registry
May 9, 2022
Read More »
Cerebral Palsy Register
May 9, 2022
Read More »
Bariatric Surgery Registry
May 9, 2022
Read More »
Australian Stroke Clinical Registry
May 9, 2022
Read More »
Australian Spine Registry
May 9, 2022
Read More »
Australian Rheumatology Association Database
May 9, 2022
Read More »
Australian Orthopaedic Association National Joint Replacement Registry
May 9, 2022
Read More »
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