The GUARD Collaborative is a coalition of peak body organisations, Genetic Support Network Victoria, Genetic Alliance Australia (NSW), Syndromes Without A Name (SWAN Australia) and Genetic and Rare Disease Network (WA) that came together to:
- Increase awareness of genetic, rare and undiagnosed diseases in Australia
- Develop agreed position statements on matters that impact people living with genetic, rare and undiagnosed diseases in Australia to represent their views and for use in advocacy
- Collaborate to reduce duplication and ensure consistency of messages on matters of importance to the genetic, rare and undiagnosed disease communities in Australia
- Develop and deliver activities in the relevant national documents, including the National Genomic Health Framework and the soon to be developed National Rare Disease Framework.