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October 2019

2019 National Family Retreat – MDDA

October 4, 2019 - October 6, 2019
Tamar Valley Resort Grindelwald, + Google Map

The 2019 National Family Retreat The 2019 National Family Retreat is here and taking place in the beautiful Tamar Valley within Australia’s island state of Tasmania from October 4th to October 6th. The Tamar Valley Resort in Grindelwald is set over 150 magnificent acres mid numerous stunning lakes and is located 30 minutes from Launceston Airport. Come meet other members of the MDDA community, and their families, in a fun and social environment creating a weekend that you won’t ever…

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StepUP! in Melbourne for Down Syndrome

October 6, 2019
Princes Park Carlton, Australia + Google Map

StepUP! in Melbourne this October Throughout October we StepUP! to celebrate Down syndrome awareness month. This is a time to celebrate, recognise and promote the skills, abilities and talents of people with Down syndrome. Funds raised allow Down Syndrome Victoria to continue working alongside people with Down syndrome to deliver services, programs and support, ensuring individuals reach their full potential and live the lives they choose. The walk meanders around the lush green Princes Park and along the way has…

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Fabry Australia National Fabry Patient Meeting ‘Fabry Australia – 25 years strong!

October 19, 2019 - October 20, 2019
Rydges Cronulla Beachside

Fabry Australia is pleased to invite you to this year’s Fabry Australia National Patient Meeting – ‘Fabry Australia – 25 years strong!’ being held on Saturday 19th October 2019 at the Rydges Cronulla Beachside Hotel. Fabry Australia’s bi-annual Fabry Expert Meeting is looking to be a great event. We are fortunate to have excellent speakers presenting on a range of topics including; the latest clinical Fabry Disease research, Fabry Disease Clinical Trials, Paediatrics management, care and treatment, Fabry Disease and…

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SWAN2019 – ‘exploring the unknown through genetics and genomics’

October 19, 2019
Royal Children’s Hospital

SWAN2019 is the inaugural conference for SWAN Australia (SWAN), a not for profit organisation and peak body supporting families who have a child with an undiagnosed or rare genetic condition. SWAN2019 will bring together a range of experts to provide knowledge and understanding of genetics and genomics to those where the condition of their child is unknown. Living with the unknown is challenging and can often be isolating. SWAN2019 invites SWAN parents, carers, extended family, friends and other rare genetic…

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Walk for Mental Health – Victoria

October 20, 2019
Albert Park

When people come together as one friendships bloom, connections form, and change begins. This year, Mental Health Foundation Australia presents the Mental Health Wellbeing Walk as part of National Mental Health Month 2019. The perfect opportunity to meet good people, in a good environment and move together for a great cause. The walk takes place on Sunday the 20th of October from 10:30am – 12:30pm, Albert Park Lake  where refreshments, exciting entertainment and great company is guaranteed. On Sunday 20 October 2019 at 10:30am LOCATION Albert Park Lake Albert Park Lake, Albert Park, Victoria 3206

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November 2019

How DNA Testing is Transforming your Healthcare: promises and challenges of the genomics revolution

November 14, 2019 @ 6:30 pm - 8:00 pm
State Library of Victoria Theatrette

The Melbourne Genomics Health Alliance presents a FREE public forum on the genomics revolution and how it can transform the healthcare system. Chaired by ABC Radio National’s Paul Barclay, this forum will feature international panelists including: Prof Dame Sue Hill DBE, Chief Scientific Officer of NHS England Jillian Hastings Ward, Chair of the Participant Panel for the 100,000 Genomes Project Prof Clara Gaff, Executive Director of the Melbourne Genomics Health Alliance This special event will answer questions such as: How…

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February 2020

Rare Disease Day

February 28 @ 9:00 am - 5:00 pm
Royal Children’s Hospital

UPDATED DETAILS HERE! Reframe Rare for Rare Disease Day 2020 Friday, February 28th, 2020 There are more than 300 million patients, each supported by family, friends and a team of carers, that make up the rare disease community worldwide. Over 6,000 different diseases. Collectively, they make up the third largest country in the world. We need society to understand that millions of people living with a rare disease around the world face inequitable access to diagnosis, treatment and care. It's time to take action for…

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May 2020

Genetic Support Network of Victoria AGM

May 19 @ 5:00 pm - 6:30 pm

Register your interest:

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