Supporting the Supporters: Rare Disease Day 2021 Team Creation Workshop

Event Information

As part of the Rare Disease Day celebration in 2021we are creating a workshop event to bring genetic support groups together.

The content of the workshop will follow the theme of our Rare Disease Day event – “Who’s on your team ?” bringing you a morning of mentoring – each attending support group will be led through a process to identify the key players and individuals that will give you the greatest impact in your advocacy and awareness. The outcome of the day will be to strengthen the capacity of individuals as leaders of their GUaRD (Genetic, Undiagnosed and Rare Disease) community to establish their ‘team’, with knowledge about who needs to be on it, how to build it and how to get it working for you.

With Covid-19 Safe restrictions still driving how we can gather, our facilitators will meet with us face to face and roam through your support group breakout rooms as you take part within your own community locations via ZOOM. This will allow you to pull together your own working group from your community with the benefit of facilitation from the GSNV.

Everyone is welcome to attend and we encourage you to take part in this event which could shape the future of your organisation.

For more information email us at,au with any specific requirements or questions

We are really excited to see all your faces again and help to build sustainable support within the genetic, undiagnosed and rare communities

Once registered the ZOOM LINK to attend is : is inviting you to a scheduled Zoom meeting.

Time: Apr 27, 2021 10:00 AM Canberra, Melbourne, Sydney

Join Zoom Meeting

Meeting ID: 646 0150 7107



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