This year the Genetic Support Network of Victoria, held a virtual event to raise awareness amongst the general public and our community of Genetic, Undiagnosed and Rare disease patients, their families , support groups, clinicians and researchers, health professionals and anyone who has an interest in rare diseases.
Rare Disease Day is an annual event for the Victorian Support Sector and this event was live streamed. The recording can be viewed on the GSNV Info YouTube channel and below.
To support our supporters we will be holding a second event on Tuesday April 27 for any members of the GSNV and communities that identify themselves as a support group for people living with genetic, undiagnosed and rare conditions.
Our event will focus on ‘Who’s on your Team ’ for support groups and those interested in the awareness and advocacy of the rare disease sector.
This continues to be a critical time for the support sector and we look forward to continuing our work to allow all Victorians to flourish and achieve their possibilities.