GSNV Rare Disease Day 2022 Online Event

Event Information

Join the GSNV in celebration of Rare Disease Day with a virtual journey to focus on “Global Themes, Local Action”

Rare Disease Day takes place on the last day of February each year. This year the Genetic Support Network of Victoria will hold a virtual event to raise awareness amongst the general public and our community of Genetic, Undiagnosed and Rare Disease patients, their families, support groups, clinicians and researchers, health professionals and anyone who has an interest in rare diseases.

For 2022 our Rare Disease Day event will focus on “Global Themes, Local Action” where we plan to dive into themes identified across the international environment and how they may shape and inform the challenges Australian Genetic, Undiagnosed and Rare Disease communities will face in 2022.

The event will open with a brief introduction from our CEO Monica Ferrie, before the morning session shares with you all a series of conversations presented by international rare disease experts who will share with us their perspective on the challenges facing the Australian rare disease landscape in 2022 and create the framework for our afternoon workshop session.



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