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Understanding Unconscious Bias: Creating a Safe Space for Support 18 JULY 2024
October Practical Wellness Month 2023
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GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
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GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
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About
Our Strategic Plan
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Our Advocacy Principles
How we can help you
Our Committee
Annual Report
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Events
Understanding Unconscious Bias: Creating a Safe Space for Support 18 JULY 2024
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Pathways Specialist Nurse
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Annual Report 2023
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
About
Our Strategic Plan
Our Vision and Mission
Our Advocacy Principles
How we can help you
Our Committee
Annual Report
Our Team
Become a Member/Donate
Events
Understanding Unconscious Bias: Creating a Safe Space for Support 18 JULY 2024
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Pathways Specialist Nurse
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Annual Report 2023
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
Menu
About
Our Strategic Plan
Our Vision and Mission
Our Advocacy Principles
How we can help you
Our Committee
Annual Report
Our Team
Become a Member/Donate
Events
Understanding Unconscious Bias: Creating a Safe Space for Support 18 JULY 2024
October Practical Wellness Month 2023
Rare Disease Day 2023
Community Events
Submit your event
Community & Professionals
Individuals and Families
Navigating the health system
Mental Health
National Disability Insurance Scheme
Pathways Specialist Nurse
Resources for families and individuals
Support Groups
Australasian Support Networks
Can’t Find a Support Group?
Resources for support groups
Health Professionals
Volunteer
Volunteer Resources
Speakers Bureau
News & Research
Annual Report 2023
Notice of 2023 AGM
GUARD Collaborative Australia
GSNV Half Year Reviews & Full Year Reviews
Bits and Pieces
Lived Experience Series
GSNV Research
Self Nomination Forms
GSNV welcomes the 2023/24 Federal Budget outcomes for Health Consumers
UN General Assembly Universal Health Coverage meeting, New York
November 21-23 2023: The Inaugural National Multicultural Health and Wellbeing Conference
LINEAGE PROJECT
multiple congenital abnormalities plus intellectual disability
Perlman syndrome – DIS3L2
December 8, 2020
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Renpenning syndrome – PQBP1
December 8, 2020
Read More »
Temtamy preaxial brachydactyly syndrome – CHSY1
December 8, 2020
Read More »
Dyggve-Melchior-Clausen disease – DYM
December 8, 2020
Read More »
Salt and pepper developmental regression syndrome – ST3GAL5
December 8, 2020
Read More »
Filippi syndrome – CKAP2L
December 8, 2020
Read More »
Elsahy-Waters syndrome – CDH11
December 8, 2020
Read More »
Seckel syndrome – ATR CENPJ CEP152 RBBP8
December 8, 2020
Read More »
Fraser syndrome – FRAS1 FREM2
December 8, 2020
Read More »
Fragile X syndrome – FMR1
December 8, 2020
Read More »
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