Support Groups

Support groups play an integral role in the mental well being of the general community. They can be a shoulder to lean on, a place to get practical advice and somewhere you can talk to others with similar experiences.

If you would like to contact others that may have had similar experiences to you, please search the list below. 

Support Groups Primary

All | Latest | # A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
Showing 25 most recent names in this directory
Sotos Syndrome
info@sotos.org.au
sotos.org.au
Submitted by: Sotos Syndrome Association of Australasia
Mitochondrial Disease
1300 977 180
info@amdf.org.au
mito.org.au
Submitted by: The Mito Foundation
Hand differences
(03) 9044 2106
info@aussiehands.org
aussiehands.org
Submitted by: The Aussie Hands Foundation Incorporated
Undiagnosed, Rare Disease, Syndromes Without a Name
0404 280 441
info@swanaus.org.au
swanaus.org.au
Submitted by: Syndromes Without A Name (SWAN) Australia
Growth disorder
sspaenquiry@gmail.com
sspa.org.au
Submitted by: Short Statured People of Australia (SSPA)
Vision loss
(03) 9650 5088
info@retinaaustralia.com.au 
retinaaustralia.com.au
Submitted by: Retina Australia Victoria
Rare Disease
0497 003 104
info@rarevoices.com.au
rarevoices.org.au
Submitted by: Rare Voices Australia
Neuromuscular Disorders
Submitted by: Neuromuscular Support Group for Young Adults
Cancer
1800 640 420
info@leukaemia.org.au
leukaemia.org.au
Submitted by: Leukaemia Foundation
Kidneys
1800 454 363
careteam@kidney.org.au
kidney.org.au
Submitted by: Kidney Health Australia
Facial differences
0481 328 837
karibuanawim@gmail.com
Submitted by: Karibu Anawim
Disability
information@gvsgcsn.com.au
Submitted by: Goulburn Valley Support Group for Children with Special Needs
X & Y chromosome variation
0412 038 142
contact@axys.org.au
axys.org.au
Submitted by: Australian X & Y Spectrum Support (AXYS) 
Blood Disease
0414 309 995
info@aussicklecelladvocacy.org
aussicklecelladvocacy.org
Submitted by: Australian Sickle Cell Advocacy
Chromosome Disorders
info@arcan.org.au
arcan.org.au
Submitted by: Australian Rare Chromosome Awareness Network
Disorders of the Corpus Callosum
info@ausdocc.org.au
ausdocc.org.au
Submitted by: Australian Disorders of the Corpus Callosum
Williams Syndrome
(08) 7329 5409; 0424 787 966
wsaofsa@adam.com.au
wsasa.org.au
Submitted by: Williams Syndrome Association of South Australia
MECP2 duplication syndrome
Submitted by: Van Wright Foundation
Usher Syndrome
info@usherkidsaustralia.com
usherkidsaustralia.com
Submitted by: UsherKids Australia
Turner Syndrome
(07) 3298 6635 (Korina Kenny – National Secretary)
03 9398 1172 (Anne-Maree George – Victorian Branch President)
Contact the Turner Syndrome Association of Australia
turnersyndrome.org.au
Submitted by: Turner Syndrome Association of Australia
Tuberous Sclerosis
1300 733 435
info@tsa.org.au
tsa.org.au
Submitted by: Tuberous Sclerosis Australia
Triple X Syndrome
0404 496 902
amandamiller@iprimus.com.au
Submitted by: Triple X / Trisomy X Support Group Australia
Tourette Syndrome
(02) 9382 3726
info@tourette.org.au
tourette.org.au
Submitted by: Tourette Syndrome Association of Australia Inc
Mayer-Rokitansky-Kuster-Hauser Syndrome
info@sistersforlove.org
sistersforlove.org
Submitted by: The Sisters for Love MRKH Foundation
Cockayne Syndrome
0407 558 151
contact@friendsofsammyjoe.org
friendsofsammyjoe.org
Submitted by: The Friends of Sammy-Jo Foundation

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