Support groups play an integral role in the mental well being of the general community. They can be a shoulder to lean on, a place to get practical advice and somewhere you can talk to others with similar experiences.
If you would like to contact others that may have had similar experiences to you, please search the list below.
Support Groups Primary
Showing 25 most recent names in this directory
Sotos Syndrome Submitted by: Sotos Syndrome Association of Australasia Mitochondrial Disease Submitted by: The Mito Foundation Hand differencesSubmitted by: The Aussie Hands Foundation Incorporated Undiagnosed, Rare Disease, Syndromes Without a NameSubmitted by: Syndromes Without A Name (SWAN) Australia Growth disorderSubmitted by: Short Statured People of Australia (SSPA) Vision lossSubmitted by: Retina Australia Victoria Rare Disease Submitted by: Rare Voices Australia Neuromuscular DisordersSubmitted by: Neuromuscular Support Group for Young Adults CancerSubmitted by: Leukaemia Foundation KidneysSubmitted by: Kidney Health Australia Facial differences
0481 328 837Submitted by: Karibu Anawim
email@example.comSubmitted by: Goulburn Valley Support Group for Children with Special Needs
X & Y chromosome variation Submitted by: Australian X & Y Spectrum Support (AXYS) Blood DiseaseSubmitted by: Australian Sickle Cell Advocacy Chromosome DisordersSubmitted by: Australian Rare Chromosome Awareness Network Disorders of the Corpus CallosumSubmitted by: Australian Disorders of the Corpus Callosum Williams Syndrome Submitted by: Williams Syndrome Association of South Australia
(08) 7329 5409; 0424 787 966
MECP2 duplication syndromeSubmitted by: Van Wright Foundation Usher SyndromeSubmitted by: UsherKids Australia Turner SyndromeSubmitted by: Turner Syndrome Association of Australia Tuberous SclerosisSubmitted by: Tuberous Sclerosis Australia Triple X Syndrome
0404 496 902Submitted by: Triple X / Trisomy X Support Group Australia
Tourette SyndromeSubmitted by: Tourette Syndrome Association of Australia Inc Mayer-Rokitansky-Kuster-Hauser SyndromeSubmitted by: The Sisters for Love MRKH Foundation Cockayne SyndromeSubmitted by: The Friends of Sammy-Jo Foundation