Support Groups

Support groups play an integral role in the mental well being of the general community. They can be a shoulder to lean on, a place to get practical advice and somewhere you can talk to others with similar experiences.

If you would like to contact others that may have had similar experiences to you, please search the list below. 

Support Groups Primary

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Showing 25 most recent names in this directory
The Mito Foundation
Mitochondrial Disease
1300 977 180
info@amdf.org.au
https://www.mito.org.au/
The Aussie Hands Foundation Incorporated
Hand differences
(03) 9044 2106
info@aussiehands.org
https://aussiehands.org/
Syndromes Without A Name (SWAN) Australia
Undiagnosed or rare disease
0404 280 441
info@swanaus.org.au
http://www.swanaus.com.au/
Short Statured People of Australia (SSPA)
Growth disorder
sspaenquiry@gmail.com
https://sspa.org.au/
Retina Australia Victoria
Vision loss
(03) 9650 5088
support@retinavic.org.au 
http://www.retinavic.org.au/
Rare Voices Australia
Rare Disease
0497 003 104
info@rarevoices.com.au
https://www.rarevoices.org.au/
Neuromuscular Support Group for Young Adults
Neuromuscular Disorders
0402 517 879
https://neuromuscularsupport.weebly.com/contact.html
https://neuromuscularsupport.weebly.com/
Leukaemia Foundation
Cancer
1800 640 420
info@leukaemia.org.au
https://www.leukaemia.org.au/
Kidney Health Australia
Kidneys
1800 454 363
careteam@kidney.org.au
https://kidney.org.au/
Karibu Anawim
Facial differences
0481 328 837
karibuanawim@gmail.com
Goulburn Valley Support Group for Children with Special Needs
Disability
information@gvsgcsn.com.au
Australian X & Y Spectrum Support (AXYS) 
X & Y chromosome variation
0412 038 142
contact@axys.org.au
http://axys.org.au/
Australian Sickle Cell Advocacy
Blood Disease
0414 309 995
info@aussicklecelladvocacy.org
https://aussicklecelladvocacy.org/
Australian Rare Chromosome Awareness Network
Chromosome Disorders
info@arcan.org.au
http://www.arcan.org.au/
Australian Disorders of the Corpus Callosum
Disorders of the Corpus Callosum
info@ausdocc.org.au
https://www.ausdocc.org.au/
Williams Syndrome Association of South Australia
Williams Syndrome
(08) 7329 5409; 0424 787 966
wsaofsa@adam.com.au
http://wsasa.org.au/
Van Wright Foundation
MECP2 duplication syndrome
http://www.vanwrightfoundation.org/#contact-us
http://www.vanwrightfoundation.org/
UsherKids Australia
Usher Syndrome
info@usherkidsaustralia.com
https://www.usherkidsaustralia.com/
Turner Syndrome Association of Australia
Turner Syndrome
(07) 3298 6635 (Korina Kenny – National Secretary); 03 9398 1172 (Anne-Maree George – Victorian Branch President)
https://www.turnersyndrome.org.au/contact
https://www.turnersyndrome.org.au/
Tuberous Sclerosis Australia
Tuberous Sclerosis
1300 733 435
info@tsa.org.au
https://www.tsa.org.au/
Triple X / Trisomy X Support Group Australia
Triple X Syndrome
0404 496 902
amandamiller@iprimus.com.au
Tourette Syndrome Association of Australia Inc
Tourette Syndrome
(02) 9382 3726
info@tourette.org.au
https://tourette.org.au/
The Sisters for Love MRKH Foundation
Mayer-Rokitansky-Kuster-Hauser Syndrome
info@sistersforlove.org
http://www.sistersforlove.org/
The Friends of Sammy-Jo Foundation
Cockayne Syndrome
0407 558 151
contact@friendsofsammyjoe.org
http://www.friendsofsammyjoe.org/
The Epilepsy Foundation
Epilepsy
1300 761 487
epilepsy@epilepsyfoundation.org.au
https://www.epilepsyfoundation.org.au/

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