Support Groups

Support groups play an integral role in the mental well being of the general community. They can be a shoulder to lean on, a place to get practical advice and somewhere you can talk to others with similar experiences.

If you would like to contact others that may have had similar experiences to you, please search the list below. 

Support Groups Primary

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Showing 25 most recent names in this directory
The Mito Foundation
Mitochondrial Disease
1300 977 180
The Aussie Hands Foundation Incorporated
Hand differences
(03) 9044 2106
Syndromes Without A Name (SWAN) Australia
Undiagnosed or rare disease
0404 280 441
Short Statured People of Australia (SSPA)
Growth disorder
Retina Australia Victoria
Vision loss
(03) 9650 5088
Rare Voices Australia
Rare Disease
0497 003 104
Neuromuscular Support Group for Young Adults
Neuromuscular Disorders
Leukaemia Foundation
1800 640 420
Kidney Health Australia
1800 454 363
Karibu Anawim
Facial differences
0481 328 837
Goulburn Valley Support Group for Children with Special Needs
Australian X & Y Spectrum Support (AXYS) 
X & Y chromosome variation
0412 038 142
Australian Sickle Cell Advocacy
Blood Disease
0414 309 995
Australian Rare Chromosome Awareness Network
Chromosome Disorders
Australian Disorders of the Corpus Callosum
Disorders of the Corpus Callosum
Williams Syndrome Association of South Australia
Williams Syndrome
(08) 7329 5409; 0424 787 966
Van Wright Foundation
MECP2 duplication syndrome
UsherKids Australia
Usher Syndrome
Turner Syndrome Association of Australia
Turner Syndrome
(07) 3298 6635 (Korina Kenny – National Secretary)
03 9398 1172 (Anne-Maree George – Victorian Branch President)
Contact the Turner Syndrome Association of Australia
Tuberous Sclerosis Australia
Tuberous Sclerosis
1300 733 435
Triple X / Trisomy X Support Group Australia
Triple X Syndrome
0404 496 902
Tourette Syndrome Association of Australia Inc
Tourette Syndrome
(02) 9382 3726
The Sisters for Love MRKH Foundation
Mayer-Rokitansky-Kuster-Hauser Syndrome
The Friends of Sammy-Jo Foundation
Cockayne Syndrome
0407 558 151
The Epilepsy Foundation
1300 761 487

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