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Home » About GSNV » Our Services

Our Services


To fulfil our vision and mission we aim to: 


  • Empower individuals and their families to reach positive health and life outcomes
  • Empower people to act as community representatives
  • Represent the interests and views of individuals affected by genetic conditions to the community as well as the State and Federal governments
  • Promote consumer participation and feedback
  • Provide educational opportunities to individuals and their families, health professionals and the wider community
  • Advocate on behalf of others


In order to support people affected by genetic conditions the GSNV aims to connect:

  • Individuals/Families
  • Service Providers
  • Community
  • Government, and
  • Health Professionals


The central aim of the GSNV is to provide a point of contact for individuals and families seeking information and support. We do this by:

  • Providing timely, accurate and balanced information
  • Referring to support groups and other community services
  • Referring to clinical services
  • Facilitate peer support
  • Assisting with the establishment of new support groups and the expansion of existing groups
  • Providing educational opportunities such as workshops, seminars, patient information sessions and peer support training
  • Supporting clinical services and the delivery of quality healthcare



Healthcare Directories

Virtual Communities

Webinars & Podcasts

Support Groups

Klinefelter Support

Neuromuscular Support

NF Support