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Home » About GSNV » Our Services

Our Services

 

To fulfil our vision and mission we aim to: 

Educate

  • We provide information and resources through a range of mediums to all our stakeholders
  • We stay informed and educated ourselves
  • We maintain and update a resource library
  • We maintain professional collaborations and memberships
  • We up-skill people, support groups and communities   
  • We provide a range of educational opportunities to individuals and their families, health professionals and the wider community 

Support

  • We connect families and individuals sharing a common experience
  • We maintain a support group and network database
  • We maintain and facilitate the Supporting the Supporters Network
  • We are at the end of the telephone, helping people in crisis
  • We stand beside to empower, assist, encourage and collaborate with condition specific groups and communities
  • We facilitate peer support
  • We empower individuals and their families to reach positive health and life outcomes
  • We empower people to act as community representatives
  • We assist with the establishment of new support groups and the expansion of existing groups

Advocate

  • We represent a community voice on numerous stakeholders committees and groups
  • We represent the interests and views of individuals affected by genetic conditions to the community as well as the State and Federal governments
  • We promote and facilitate consumer participation and feedback
  • We convene the Lived Experience Group to listen to lived experience and seek to take action for positive change
  • We write articles and actively engage in debates
  • We advocate on behalf of others

Empower

  • Empower individuals and their families to reach positive health and life outcomes
  • Empower people to act as community representatives
  • Represent the interests and views of individuals affected by genetic conditions to the community as well as the State and Federal governments
  • Promote consumer participation and feedback
  • Provide educational opportunities to individuals and their families, health professionals and the wider community
  • Advocate on behalf of others

Connect

In order to support people affected by genetic conditions the GSNV aims to connect:

  • Individuals/Families
  • Service Providers
  • Community
  • Government, and
  • Health Professionals

 

 

Healthcare Directories

Virtual Communities

Webinars & Podcasts

Support Groups

Klinefelter Support

Neuromuscular Support

NF Support