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Seeking Contact
The GSNV works hard to connect individuals and families
interested in sharing their experiences and insights with
others.
People interested in contacting others "in the same boat" can contact us to
advertise their details through the GSNV and we will assist in
making connections.
Condition
|
Family Information
|
| Atypical Haemolytic Uraemic
Syndrome |
Looking to connect with others or
families with this condition |
| Osteogenesis
Imperfecta |
Looking to connect with another young
person with this condition |
| Ring Chromosome
8 |
Looking to conect with a family who
have a child with this condition |
| Langer-Giedion
Syndrome |
Looking to connect with another young
adult with this condition |
| Hereditary Sensory Autonomic
Neuropathy |
Looking to connect with a family with with this condition
|
| Undiagnosed Genetic
Conditions |
Looking to connect with a family who
have a child with an undiagnosed condition |
| Incontinentia
Pigmenti |
Looking to connect with a famly who
have a child with this condition |
| Palmar Plantar
Keratoderma |
Looking to connect with another
individual or family with this condition |
| Carriers of Balanced
Translocation |
Looking to connect with another
individual or family with this condition |
| Stickler
syndrome |
Looking to connect with another
individual or family with this condition |
| Cloacal
Anomalies |
Looking to connect with another
individual or family with this condition |
| Pitt Hopkins
syndome |
Looking to connect with another family
how have a child with this condition |
In addition, we also have a database of individuals with genetic
conditions who are interested in peer support contact. Contact us if you
are interested in connecting with others.
We are committed to your privacy.
No details will be published without your consent, and those
that are published will not include personal contact
details. These contact details will remain on our website for three
months.
We will obtain consent from both parties before connecting
individuals and families.