Support After Fetal Diagnosis of Abnormality
At the time of diagnosis of a fetal abnormality, testing and
decision making can seem overwhelming. There may be limited time to
reflect on what has happened. The experience may be so profound
that it takes months for its' meaning to sink in. Family and
friends may offer lots of support at this critical time. However,
as time passes and others move on with their lives, many parents
find it helpful to talk with others who have had a similar
experience, to share and reflect on what has happened.
SAFDA Victoria was originally established by a group of
professionals to provide additional support to families who have
made the difficult decision about whether or not to continue with a
pregnancy after a diagnosis of a fetal abnormality. SAFDA was
coordinated by the Genetic Counselling Service at the Royal Women's
Hospital from 1994-2011. SIDS and Kids Victoria took over the
coordination of the group in 2012.
Shared experience meetings provide an opportunity to meet other
parents in a small group and talk over issues of mutual concern.
There is no set topic in these meetings. The group members direct
the discussion and may participate as much as they choose.
Everything discussed at the meeting is confidential.
If you are interested in attending a meeting, please contact
SIDS and Kids Victoria on (03) 9822 9611.
Alternatively, if you would like to speak to a genetic
counsellor, please contact one of the following prenatal genetic
Royal Women's Hospital - 8345 2180
Monash Medical Centre - 9594 2026
Mercy Hospital for Women - 8458 4250