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SAFDA
SAFDA
Support After Fetal Diagnosis of Abnormality
What is SAFDA?
SAFDA was established in 1994 to provide added support to
families who have had to make difficult decisions because of a
diagnosis of a fetal abnormality.
Experienced professionals including genetic counsellors and
social workers have come together to offer this support
network.
How can SAFDA help?
At the time of diagnosis, testing and decision-making can often
seem overwhelming. Events move so fast that there may be no time to
reflect completely. The experience may be so profound that it takes
months for its meaning to sink in. Family and friends may offer a
lot of support at this critical time.
As life moves on, many parents welcome contact with others who
have shared similar experiences. It can be helpful to gather with
others who understand, to share and reflect on what has
happened.
What are shared experience meetings?
Shared experience meetings give the opportunity to meet other
parents in small groups and talk over issues of mutual concern.
There is no set topic in these meetings. The group members direct
the discussion and participate as much as they choose.
Are the meetings confidential?
Everything discussed at the meeting is confidential and we ask
that the privacy of those present be respected.
Who else can I talk to?
The genetic counsellors are available for individual discussions
upon request in addition to existing support.
Where are the meetings held?
Location
Meeting venues alternate between the Royal Women's Hospital (cnr
Grattan St and Flemington Rd, Parkville); and SIDS and Kids, 1227
Malvern Rd, Malvern.
Date
SAFDA meetings are every three months on a Tuesday evening.
Time
Meetings are held from 7 - 9 pm
The meetings run to time and refreshments are provided.
RSVP
It is necessary to establish group numbers for the meetings. Please
RSVP if you will be coming. You can RSVP by email to Lydia Gaffney or
phone 8345 2180.
SAFDA Newsletters
If you do not currently receive the SAFDA newsletter but would
like to, please call or email Lydia Gaffney with your contact
details on 03 8345 2180 or lydia.gaffney@ghsv.org.au.
You may also like to write to us:
Genetic Counselling Service
Royal Women's Hospital
Cnr Grattan St & Flemington Rd
Parkville VIC 3052
More Information
For information about SAFDA, including written resources and
support groups, you may contact genetic counsellors at either:
Royal Women's Hospital - 8345
2180
Monash Medical Centre - 9594 2026
Mercy Hospital for Women - 9270 2394