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Research
Looking for participants!
Genetics in Primary Care
Have you ever talked to your GP about genetics? Through the MCRI
new research is being conducted into understanding how genetics is
part of primary care, and changes that could be made in the
future.
Participation includes taking part in a 30-60 minute interview,
and the possibility to be involved in focus groups if you are
interested.
Participants will be given a $20 voucher as a token of
appreciation for their time.
If you would like more information, please contact Belinda
McClaren by email belinda.mcclaren@mcri.edu.au or
phone (03) 8341 6331.
This study has ethics approval from the University of Melbourne:
HREC 1034301.1
Meaning Making and Family Quality of Life
This honours research project, from the School of Health
Sciences at RMIT University, focuses on understanding families'
experiences of quality of life and how they give meaning to their
lives when experiencing stressful parenting.
To participate in this study, all you need to do is complete an
'Expression of Interest for Parent Participants' and a very quick
questionnaire.
For full details, take a look at the research project flyer or please contact Amanda
Yee at s3359448@student.rmit.edu.au.
'Disability & Ability: How Young People with Impairments
make the Transition to Adulthood'
A University of Sydney and Deakin University project, funded by
the Australia Research Council are seeking to recruit young people
aged 19-26yrs with impairments to be interviewed yearly for 3yrs.
Interviews will take a life history approach and explore a range of
topics. The project has ethics approval from the University of
Sydney Human Research Ethics Committee.
For further information about this study, email transition.study@sydney.edu.au
or visit: http://sydney.edu.au/health_sciences/afdsrc/young_adults/underway/transitions_adulthood.shtml
New NF1 Adult Study
Do you have NF1 and are you aged between 18 and 40 years? If so,
and you are available to meet with a researcher at one of three
hospitals in the Sydney area, you may be interested in
participating in a research project which is looking at NF1 in
adulthood.
Male and female participants who have medically confirmed NF1
are sought for an ethically approved research project which will
take place at one of three hospital sites in the Sydney area (The
Children's Hospital Westmead, Westmead Hospital and Royal North
Shore Hospital).
The purpose of the study is to find out more about how NF1
affects the life and health of adults who have the condition.
For more information on the study contact Hilda Crawford (02)
9845 3714.
Victorian Equal Opportunity and Human Rights Commission
A major research project is being undertaken into the factors
that contribute to families deciding to relinquish or surrender a
child with a disability into state care.
The aims of the study is to gather information to better
understand the systemic issues, such as difficulties accessing
support and respite care, that may contribute to
relinquishment.
The commission would like to hear from families and young people
who are directly affected by relinquishment. The views of
government, service providers, advocates and support groups are
also required.
Participation can include confidential interviews, case studies
and a survey. To participate in the survey, visit humanrightscommission.vic.gov.au/relinquishmentorganisationsurvey
For more information about the research visit humanrightscommission.vic.gov.au/relinquishment
Disclaimer:
The presence of an advertisement for a research project does not
represent an endorsement by GSNV of that research. GSNV assumes no
responsibility for the quality or conduct of research by
other agencies or organisations. GSNV urges you
to consider the benefits and consequences of taking part
in any research study, and to contact the appropriate researchers
should you have any questions or concerns.