The following is a list of support groups and organisations that support people with genetic conditions in Victoria. If you are looking for information about organisations specialising in advocacy for people with genetic conditions, please visit our advocacy page. If you know of any groups who aren't covered here, or if you experience trouble contacting anyone listed, please email us at info@gsnv.org.au. And if you are a support group who has recently 'moved house' please email us at the same address to let us know, so we can update your details!
We love colour-coding, so Melbourne-based groups are highlighted in blue, groups based in country Victoria are highlighted in green, NSW groups are highlighted in yellow, NT groups in orange, and WA groups in pink. International groups based overseas are higlighted in grey.
Androgen
Insensitivity Syndrome Support Group (AIS)
www.vicnet.net.au/~aissg |
PO
Box 1089
Altona Meadows
Vic 3028 |
Contact:
Anthony Briffa
(03) 9315-8809
aissg@iprimus.com.au |
Angelman Syndrome
Support Group
www.angelmansyndrome.org |
|
Contact:
Jo Davis (Vic Rep)
(03) 97797600
heyjod@gmail.com |
Anglicare
Parentzone
See also under 'P' for Parent to Parent
organisations. Statewide services with various locations
throughout Victoria.
www.anglicarevic.org.au/parentzone
|
|
Contact
Frankston Office:
(03) 9781 6700 |
Anxiety Recovery
Centre Victoria
www.arcvic.com.au |
PO
Box 358
Mt. Waverley
Vic 3149 |
Contact:
arcmail@arcvic.com.au |
Association
for Children with a Disability
www.acd.org.au |
PO Box
358
Mt. Waverley
Vic 3149 |
Contact:
Phone: (03) 9818 2000
Free Call: 1800 654 013 (rural callers)
mail@acd.org.au |
Aural
Atresia and Microtia Support & Information |
5
Fontayne Crt
Frankston
Vic 3199 |
Contact:
kewipl@bluep.com |
Aussie
Hands
www.aussiehands.org |
Box
8
Coburg Vic 3058 |
Contact:
(03) 9354 0324
info@aussiehands.org
|
Aussie
Hemi Support Group (Hemihypertrophy)
http://groups.yahoo.com/group/ |
|
|
Australasian
Turberous Sclerosis Society
www.atss.org.au |
17 Linksview
Rd
Springwood
NSW 2777 |
Contact:
1300 733 435
info@atss.org.au |
Australian
Arthrogryposis Group (TAAG)
www.taag.org.au |
'Berriga'
Fishers Hill Rd
Vacy
NSW 2421 |
Contact:
Jacqueline Brand
(02) 4938 8060
berriga@telstra.com |
Australian
Crohn's and Colitis Association (ACCA)
www.acca.net.au
|
PO
Box 2160
Hawthorn
Vic 3122 |
Contact:
(03) 9815 1266
info@acca.net.au |
Australian Ectodermal
Dysplasia Support Group (ozED)
www.ozed.org.au |
8 Dalmatia
Crt
Rowville
Vic 3178 |
Contact:
(03) 9755 5626
info@ozed.org.au
|
Australian Holoprosencephaly Support
Group
http://groups.yahoo.com/group/ausholoprosencephaly
|
|
Contact:
Lee-Anne
0409 444 863
ausholoprosencephaly@yahoogroups.com |
Australian
Huntington Disease Association (Vic) Inc. (AHDA)
www.huntingtonsvic.org.au |
PO Box
60
Holmesglen
Vic 3148 |
Contact:
(03) 9563 3922
info@huntingtonsvic.org.au |
Australian
Jeune Syndrome Association
http://home.vicnet.net.au/~jeunesyn
|
7 Cathcart
St
Maidstone
Vic 3012 |
Contact:
Claudine
claudinespinner@optusnet.com.au |
Australian
Leukodystrophy Support Group Inc. (ALDS)
www.alds.org.au |
10
Mitchell St
Mentone
Vic 3194 |
Contact:
Julie Thomas
(03) 9584-7070
mail@alds.org.au |
| Australian
Sturge-Weber Support Group |
|
Contact:
Jo Stanford
(03) 9762 4630
aswsg@alphalink.com.au
|
Australian
Wolf-Hirschhorn Syndrome Support Group
http://home.vicnet.net.au/~awhssg |
25 Baker
Rd
Invergowrie
NSW 2350 |
Contact:
bectamumbi@bigpond.com |
Autism Victoria
www.autismvictoria.org.au
|
PO
Box 235
Ashburton
Vic 3147 |
Contact:
Amanda Golding
(03) 9885 0533
admin@autismvictoria.org.au
|
The
Bailee Ada Foundation
(Congenital Disorders of Glycosylation)
www.baf.org.au |
|
Contact:
Melissa
0414 846 603
melissa@baf.org.au |
CAH
Support Group Australia
www.cah.org.au |
PO
Box 100, CAHSGA Inc
Mitcham
Vic 3132 |
Contact:
Linda Powell
(03) 9513-9255
lindapowell@optusnet.com.au |
Cancer Information
and Support Service
www.cancervic.org.au
|
The
Cancer Council Victoria
1 Rathdowne St
Carlton
Vic 3053 |
Contact:
(03) 9635-5000
enquiries@cancervic.org.au
|
Cardio-Facio-Cutaneous
(CFC) Family Network Australia
www.cfcsyndrome.org
|
PO
Box 175
Noonamah NT 0837 |
Contact:
Judy Bartolo
(08) 8988 6065 (after hours) |
Cardiomyopathy
Association of Australia (CMMA)
www.cmaa.org.au
|
PO
Box 273
Hurstbridge Vic 3099 |
Contact:
1300 552 622
(24hr message bank service);
or Heartline 1300 362 787;
info@cmaa.org.au |
Charcot-Marie
Tooth Association Australia (CMTAA)
www.e-bility.com/cmtaa/ |
|
Contact:
(02) 9767-5105
cmtaa@email.cs.nsw.gov.au
or: Bob Hayes (Vic Co-ordinator)
(03) 9723-3595 |
CHARGE
Syndrome Association of Australasia
www.chargesyndrome.org.nz |
|
Contact:
Madelene Rich - Parent Director
(02) 9605 8475
austcharge@hotmail.com |
Cherubs
Australia
The Association of Congenital Diaphragmatic Hernia, Research,
Advocacy & Support
http://www.cdh.org.au |
PO
Box 375
Morwell
Vic 3840 |
Contact:
Danielle
(03) 5135 6999
information@cdh.org.au |
CleftPALS
Victoria
www.cleftpalsvic.com
|
PO
Box 2352
Oakleigh
Vic 3166 |
Contact:
(03) 9782-1594
cleftpalsvic1@hotmail.com
|
Collective
of Self-Help Groups (COSHG)
www.coshg.org.au
To contact, start, or maintain self help or social action groups.
Directory of Self Help and Social Action Groups |
PO Box
251
Brunswick East
Vic 3057 |
Contact:
Christine or Ahnna
(03) 9349-2301
info@coshg.org.au
orders: orders@coshg.org.au
membership: members@coshg.org.au |
| Congenital Adrenal
Hyperplasia - see CAH Support Group Australia above
|
|
|
Congenital Diaphragmatic
Hernia - see Cherubs Australia above |
|
|
| Congenital Disorders
of Glycosylation - see Bailee Ada Foundation above |
|
|
Connect Groups
Support Groups Association WA Inc (previously WISH)
www.connectgroups.org.au |
PO Box
8140
Perth Business Centre
WA 6849 |
Contact:
(08) 9228 4488
1800 195 575 (Freecall)
(08) 9228 4490 (Fax)
info@connectgroups.org.au
Georgia Booth
georgia@connectgroups.org.au
Tashi Wolf
tashi@connectgroups.org.au |
Cornelia de
Lange Syndrome Australasia Association (CdLS)
www.cdlsaus.org
|
PO
Box 20
Putney
NSW 2112 |
Contact:
Lynne Wood
(03) 970 42421 |
Cri
Du Chat Support Group of Australia
www.criduchat.asn.au
|
104 Yarralumla
Dr
Langwarrin
Vic 3910 |
Contact:
(03) 9775 9962
info@criduchat.asn.au |
| Crohn's and Colitis
- see under 'A' for Australian Crohn's &
Colitis Association |
|
|
Cystic Fibrosis
Victoria (CF)
www.cfv.org.au
|
80
Dodds St
Southbank
Vic 3006 |
Contact:
Sarah Gliddon
(03) 9686-1811
or free call 1800 633 685
support@cfv.org.au |
Diabetes
Australia - Victoria
www.diabetesvic.org.au |
570
Elizabeth St
Melbourne
Vic 3000 |
Contact:
1300 136 588
mail@diabetesvic.org.au
|
Down Syndrome
Association Victoria (DSAV)
www.downsyndromevictoria.org.au |
219 Napier
St
Fitzroy
Vic 3063 |
Contact:
(03) 1300 658 873
info@dsav.asn.au
|
Dystrophic
Epidermolysis Bullosa Research Association (DEBRA)
www.debra.org.au
|
PO
Box 186
Burwood
Vic 3125 |
Contact:
Deb Holmes (Vic Co-ordinator)
(03) 9845 8034
enquiries@debra.org.au |
Ectodermal
Dysplasia - see under 'A' for Australian
Ectodermal Dysplasia Support Group (ozED) above |
|
|
EDSAUS - Ehlers Danlos
Syndrome Support in Australia
http://edsaus.ning.com/ |
|
Contact:
via website
|
Epilepsy Foundation
of Victoria Inc.
www.epinet.org.au
|
818
Burke Rd
Camberwell
Vic 3124 |
Contact:
(03) 9805-9111
epilepsy@epilepsy.asn.au |
Fabry
Support Group Australia Inc.
www.fabry.com.au |
PO Box 269Willoughby NSW
2068
|
Contact:
President Megan Fookes
Ph: (02) 9967 4395
megan.fookes@fabry.com.au |
Facial Paralysis/Moebius
Syndrome
kidswithfacialparalysis-moebiussyndrome.webs.com |
|
Contact:
Karin
karinsthompson@yahoo.com.au |
Families of
Children with a Disability Support Group (see under
'A' for the Association for Children with a Disability &
under 'S' for SCAFFOLD - Supporting Children and Families for
all levels of Disaibility)
|
|
|
Fibromyalgia
Syndrome - see under 'G' for Glenroy Fibroamyalgia
Self-Help Group Organisation
|
|
|
FOD
Family Support Group (Fatty Oxidation Disorders)
www.fodsupport.org
|
PO Box
54
Okemus M1
USA 48805 0054 |
Contact:
Deb Lee Gould
00 11 1 517 381 1940
00 11 1 866 290 5206 (Fax)
deb@fodsupport.org |
FOP
Support Group (Fibrodysplasia, Myositis Ossificans
Progressiva)
|
PO
Box 587
Cowes
Vic 3922 |
Contact:
Damian Jones
jones@waterfront.net.au |
Fragile
X Association of Victoria
http://fragilexvic.com.au |
PO
Box 7312
Karingal Centre
Frankston Vic 3199 |
Contact:
0421 152 690 (Peer support)
info@fragilexvic.com.au |
Gastrostomy
Information and Support Society (GISS)
www.scopevic.org.au/therapy_advisory_giss.html |
PO
Box 608
Box Hill
Vic 3128 |
Contacts:
Hilary Johnson, Lyn Tatt
(03) 9843-2000
giss.crc@scopevic.org.au
|
Gaucher
Association of Australia
www.gaucherdisease.com.au
|
PO
Box 983
Sunbury
Vic 3429 |
Contact:
Loraine Mitchell
(03) 9740-7203
gaucher.australia@gmail.com |
Glenroy
Fibroamyalgia Self-Help Group Organisation
|
PO Box
223
Moreland
Vic 3058 |
Contact:
Penelope Myers
0422 616 344
glenroyfms.org.au
|
Haemophilia
Foundation Victoria Inc.
www.haemophiliavic.org.au
*Read our 'Meet our
Support Groups' feature on the HFV* |
13
Kieth St Hampton East Vic |
Contact:
Pamela or Julia
(03) 9555-7595
hfvic@vicnet.net.au |
HeartKidsVictoria
www.heartkidsvic.org.au |
|
Contact:
(03) 9513 9030 (message bank service)
0419 576 448
heartkids@hearkids.org.au |
Hemihypertrophy - see under 'A'
for Aussie Hemi Support Group
|
|
|
Holoprosencephaly - see under 'A'
for Australian Holopresencephaly Support Group
|
|
|
| Huntington Disease- see under 'A'
for Australian Huntington Disease Association Vic |
|
|
Immune
Deficiencies Foundation of Australia (IDFA)
www.idfaustralia.org |
PO Box
198
Villawood
NSW 2163 |
Contact:
1800 100 198(freecall)
General Manager: Cathryn Baker
Support Services Officer:
Joy Williams
support@idfaustralia.org
info@idfaustralia.org |
Jeune
Syndrome - see under 'A' for Australian Jeune
Syndrome Association
|
|
|
| Kabuki
Syndrome - see under 'S' for Supporting Aussie
Kids with Kabuki Syndrome |
|
|
Kabuki
Syndrome Network
International
support group for Kabuki Syndrome, based in Canada
www.kabukisyndrome.com
|
|
Contact:
Stacey (Australian contact)
(03) 5275 1542
dsmckiernan@dodo.com.au |
Kawasaki
Disease Foundation
Australia
www.kdfoundation.org.au
|
PO Box
585
Brentford Square,
VIC 3131 |
Contact:
akfn@optusnet.com.au |
Klinefelter
Syndrome Support Group Australia
see also under 'X'
for XXWhy.com: The Australian Support Group for Klinefelter
Syndrome
|
|
Contact:
Kieran or Paul
0419 556 825 / 0419 334 805
kieran215@hotmail.com
pbyrnemoroney@yahoo.com.au |
Learning
Difficulties - see under 'S' for SPELD Vic
|
|
|
| Leukodystrophy
- see under 'A' for Australian Leukodystrophy
Support Group Inc. (ALDS) |
|
|
| Long QT Syndrome - see
under 'S' for Sudden Arrhythmia Death Syndromes
(SADS) Foundation Australia |
|
|
Lymphoedema
Association of Victoria Inc.
www.lav.org.au
|
PO
Box 2412
North Ringwood
Vic 3134 |
Contact:
Mary D'Elia
1300 852 850
info@lav.org.au |
Marfan
Association Victoria Inc.
www.marfanvic.org.au |
PO
Box 42
Sunbury
Vic 3429 |
Contact:
Sally Ferguson or Justin Nix
03 5784 1357 / 0417 358 549
marfan@bigpond.net.au |
Meniere's
Support Group of Vic. Inc. (MSGV)
www.menieres.org.au
|
Suite
4
18-28 Skye Rd
Frankston
Vic 3199 |
Contact:
Lynn or Michelle
(03) 9783 9233
info@menieres.org.au
|
| Mental Illness
- see under 'V' for Victorian Mental Illness
Awareness Council |
|
|
Metabolic
Dietary Disorders Association (MDDA)
www.mdda-australia.org |
PO Box
33 Montrose
Vic 3765 |
Contact:
1800 288 460
mdda@optusnet.com.au |
Moebius Syndrome/Facial
Paralysis
http://kidswithfacialparalysis-moebiussyndrome.webs.com/ |
|
Contact:
Karin Thompson
karinsthompson@yahoo.com |
Motor Neurone
Disease Association of Victoria Inc. (MND)
www.mnd.asn.au
|
PO
Box 23
Canterbury
Vic 3126 |
Contact:
Inez van Polanen
(03) 9830 2122
Toll Free: 1800 806 632
info@mnd.asn.au |
Mucopolysaccharide
& Related Diseases Society Aust (MPS)
www.mpssociety.org.au
|
PO
Box 623
Hornsby
NSW 1630 |
Contact:
Wendy Boon (National Office)
(02) 9476-8411
Fax: (02) 9476 8422
info@mpssociety.org.au
|
Muscular Dystrophy
Association (MDA)
www.mda.org.au
|
111
Boundary Rd, North Melbourne
Vic 3051 |
Contact:
Melanie Forsyth
(03) 9320 9555
info@mda.org.au |
Narcolepsy
and Overwhelming Daytime Sleep Society of Australia (NODSS)
www.nodss.org.au
|
PO Box
100
Rosanna
Vic 3084 |
Contact:
Anne Thiele
(03) 9761-9767
info@nodss.org.au |
NIDKIDS Support
Group Ltd
(Neuronal
Intestinal Dysplasia)
www.nidkids.org.au
|
PO
Box 30
Lilydale
Vic 3140 |
Contact:
(03) 9727 2997
mail@nidkids.org.au
|
Noah's
Ark Inc (Parent To Parent Gippsland)
www.noahsarkinc.org.au/ |
PO Box
3163
Gippsland Mail Centre
Vic 3841 |
Contact:
Yvonne Waite
Free Call: 1800 010453
(03) 5135 3131
p2pg@noahsarkinc.org.au |
| Northern
Parent Support Program |
123 Albion
Street
Brunswick Vic 3055 |
Contact:
Thea Calzoni
Northern Parent Support Coordinator
(03) 9385 3235 |
OzED
- see under 'A' for Australian Ectodermal
Dysplasia Support Group above |
|
|
Para/Quad
Association of Victoria
www.paraquad.asn.au
|
208
Wellington St
Collingwood
Vic 3066 |
Contact:
(03) 9415-1200
theteam@paraquad.asn.au |
Parent Support Network
- Eastern Region
www.psn-emr.com.au
'Supporting Parents, Carers and Families who
have a child with a disability or special need.' |
|
Contact:
Rachael Veal
psn-emr@bigpond.net.au
|
Parentzone
- see under 'A' for Anglicare Parentzone
|
|
|
Parent / Carer Support
for more information on parent/carer support
groups and services please see the Resources
for Carers section of our Resources page |
|
|
| Pierre Robin
Sequence |
16
Silcocks Hill Rd
Toora
Vic 3962 |
Contact:
Debbie Clavarino
(03) 5686 2596 |
Pierre Robin Ausralia Information,
Support and Education (PRAISE)
www.pierrerobin.org.au |
10 Impressa
Cl
Langwarrin Vic 3910
|
Contact:
Mick and Jacinta Cannon
(03) 8751 1174
0418 553 380
0418 553 349
info@pierrerobin.org.au |
Porphyria Association
www.nectarine.com.au/othersites/porphyria/who.htm |
Nerve
Centre
54 Railway Road
Blackburn Vic 3130
|
Contact:
porphyria@mssociety.com.au |
Prader-Willi
Syndrome Association of Victoria Inc.
www.pws.asn.au
|
PO
Box 92
Kew
Vic 3101 |
Contact:
info@pws.asn.au |
| Primary Immune
Deficiency - see under 'I' for Immune Deficiencies
Foundation Australia (IDFA) |
|
|
Psoriasis
Association of Victoria Inc.
www.vicnet.net.au/~psoriasis
|
PO
Box 290
Ashburton
Vic 3147 |
Contact:
(03) 9813 8080
pai@virtual.net.au |
PXE
Support Group
(Pseudoxanthoma
Elasticum)
|
PO
Box 598
Torquay
Vic 3228 |
Contact:
Michael Norman
(03) 5261-9049 |
PXE WA
(Pseudoxanthoma Elasticum)
www.pxe.org |
|
Contact:
Sally
pxewa@bigpond.com |
Retina
Australia (Vic) Inc.
www.retinaaustralia.com.au
|
4th
Floor, Ross House
247 - 251 Flinders Lane
Melbourne
Vic 3000 |
Contact:
Kate Giles
(03) 9650-5088
ravic@retinaAustralia.com.au |
Rett Syndrome
Association of Australia
www.general.uwa.edu.au/u/hleonard/
|
GPO
Box 3497
Melbourne
Vic 3001 |
Contact:
Bill Callaghan
(03) 9615-7077
rettaust@bigpond.com |
SCAFFALD -
Supporting Children and Families for all Levels of Disability
www.riac.org |
145
Crook Street
Bendigo Vic 3550 |
Contact:
Karen Murphy
1800 224 799
bendigoz@riac.org.au |
Short
Statured People of Australia (SSPA)
www.sspa.org.au
|
2
Mac Cres
Parkdale
Vic 3194 |
Contact:
Marilyn Lynch
(03) 9575-7793 |
| Shwachman-Diamond
Syndrome - Australia Inc |
9
Jim Rd
Newham
Vic 3442 |
Contact:
Joan Buchanan
(03) 5427-0645
buchanan.joan@gmail.com |
SIDSandKIDS
Victoria
www.sidsandkids.org/vic |
1227
Malvern Rd
Malvern
Vic 3144 |
Contact:
1800 240 400 or 1300 308 307
melbourne@sidsandkids.org |
Smith
Magenis Syndrome Australia (SMS)
www.gsnv.org.au/SMS
or http://au.groups.yahoo.com/group/smsaussies/
(mailing list) |
|
Contact:
Bernie Benson
0407 920 881 or (02) 6926 1612
benson@dragnet.com.au |
Sotos Support Group
|
|
Contact:
lkwllms@optusnet.com.au |
Spasmodic
Torticollis - see under 'A' for Australian
Spasmodic Torticollis Assoc. (ASTA)
|
|
|
SPELD
Vic. Inc.
The Specific Learning Difficulties Association of Victoria
www.speldvic.org.au |
494
Brunswick St
North Fitzroy
Vic 3068 |
Contact:
speldvic@bigpond.com.au |
Spina Bifida
Foundation of Victoria
www.sbfv.org.au
*Read our 'Meet
our Support Groups' feature on the Spina Bifida Foundation
of Victoria* |
4th
Floor,
Ross House
247-251 Flinders Lane
Melbourne 3000 |
Contact:
(03) 9663 0075
info@sbfv.org.au
|
Spino Cerebellar
Ataxia (SCA) Australia
www.scars.org.au |
|
Contact:
Jane
janetombs@ozemail.com.au |
Spinal Muscular
Atrophy Association of Australia
www.smaaustralia.com |
8/27-33
Wood Street
Beaconsfield Vic 3807
|
Contact:
Julie
Ph: (03) 97689052
fax: (03)97689057
reception@smaaustralia.com
See web site for details about online
meetings. |
| Sturge-Weber
Syndrome - see under 'A' for Australian Sturge-Weber
Support Group |
|
|
| Sudden
Infant Death Syndrome - see under 'S' for SIDSandKIDS
Victoria |
|
|
Sudden Arrhythmia Death
Syndromes (SADS) Foundation Australia
www.sads.org.au
|
|
Contact:
info@sads.org.au
|
Support After Fetal
Diagnosis of Abnormality (SAFDA) Victoria
www.gsnv.org.au/safda
|
c/o
Genetic Counselling Services, Royal Women's Hospital
Cnr Grattan St & Flemington Rd
Parkville VIC 3050 |
Contact:
Genetic counsellors at
(03) 8345 2180 (Royal Women's Hospital)
(03) 9594 2026 (Monash Medical Centre)
(03) 9270 2394 (Mercy Hospital for Women) |
Support Group for
Parents Proceeding with an Affected Pregnancy
|
|
Contact:
Kitty
(03) 9571 6246 |
Supporting Aussie
Kids with Kabuki Syndrome (SAKKS)
www.sakks.org
*Read our 'Meet
our Support Groups' feature on SAKKS* |
|
Contact:
Stacey McKiernan
stacey@sakks.org
0408 552914 |
Thalassaemia
Australia
www.thalassaemia.org.au
*Read our 'Meet our
Support Groups' feature on the TSV* |
Thalassaemia
Australia Inc.
333 Waverley Rd
Mt. Waverley Vic 3149 |
Contact:
Maria Kastoras
1300 300 318 (local call from anywhere
in Australia)
Office: (03) 9888 2211
Fax: (03) 9888 2150
email:
thalassaemia.org.au
|
Thyroid
Australia
www.thyroid.org.au |
333 Waverley
Rd
Mount Waverley
Vic 3149 |
Contact:
(03) 9888 2588
support@thyroid.org.au |
Tourette
Syndrome Association Victoria
www.tsavic.org.au/
*Read our 'Meet
our Support Groups' feature on the TSAV* |
The
Nerve Centre
54 Railway Rd
Blackburn
Vic 3130 |
Contact:
(03) 9845 2700
tourettes@mssociety.com.au
|
| Tuberous Sclerosis
- see under 'A' for Australasian Tuberous Sclerosis
Society |
|
|
| Turner Syndrome
- see under 'V' forVictoria Turner Syndrome
Association |
|
|
Turner Syndrome
Support Group - Albury/Wodonga Region
www.turnerssyndrome.org.au
|
PO Box
1459
Wodonga Vic 3690 |
Contact:
Diane King
0412 462 194
Dianne.King1@defence.gov.au |
Trichothiodystrophy
Support Network
www.vp-it.com.au/sammyjoe/
*Read our 'Meet
our Support Groups' feature on the TTD Support Network* |
|
Contact:
Maria Liistro
(03) 9305 6182 or 0407 558 151
sammyjo2@bigpond.com.au
|
Unique
in Australia
(A sub group of Unique)
www.rarechromo.org
|
|
Contact:
Mark or Tanya Files
(03) 9455-2510 or 0402 013 865
takmarj@bigpond.net.au |
Victorian
Mental Illness Awareness Council
www.vmiac.com.au |
|
Contact:
Isabell Collins
(03) 9387-8317
info@vmiac.com.au |
Victoria Turner
Syndrome Association
www.turnerssyndrome.org.au
|
|
Contact:
Karlene Lynch
(03) 9337 4074 |
Williams
Syndrome Family Support Group (Vic) Inc
home.vicnet.net.au/~wsfsg
|
43 Naroo
St
Balwyn
Vic 3103 |
Contact:
ws.vic.aus@gmail.com |
| Wolf-Hirschhorn
Syndrome - see under 'A' for Australian Wolf-Hirschhorn
Syndrome Support Group (AWHSSG) |
|
|
XXWhy:
The Australian Support Group for Klinefelter Syndrome
www.xxwhy.com
Not online? See also under 'K'
for Klinefelter Syndrome Support Group Australia
|
|
Contact:
James
james@xxwhy.com
http://groups-beta.google.com/group/xxwhy |
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