Useful links
|Useful Resources
Disability Issues
Accessibility.com.au
This website provides a range of disability information resources
and links to other related sites.
Better
Health Channel
Through searching this website you can access a large number of
articles and resources on disability and disability issues.
Bookmarklets
This site contains links that you can use to view pages differently
- by expanding text size, removing background images, changing font
or background colours, etc. Useful for increasing accessibility.
Disability
Information Network Australia (DINA)
DINA is a group of disability information providers with interest
in resource and information sharing and networking.
Genetic
Testing and Australia's Anit-discrimination Laws - Do They Pass
The Test?
Joan Napoli of Australian Business Lawyers discusses this hot topic
and raises some interesting questions.
International Support Organisations
Canadian
Directory of Genetic Support Groups
This website provides a comprehensive listing of genetic conditions
and support groups in Canada.
Chromosome
Deletion Outreach
This US based group as part of the Genetic Alliance provides support
and information for families, individuals and professionals affected
by and dealing with chromosome deletion.
Genetic
Alliance
The Genetic Alliance is an international coalition based in the
United States uniting millions of people working or living with
a genetic condition. They host a very comprehensive website covering
many aspects of genetics and genetic support.
Genetics
and Rare Conditions Site
Developed by the University of Kansas in the United States, this
site lists a number of resources concerning genetics and genetic
health including support groups, conditions and more.
Mountain States
Genetic Network
Based in the United States, this group covers Arizona, Colorado,
Montana, New Mexico, Utah and Wyoming. It covers a large range of
topics and includes information on local support groups and genetic
conditions.
Paralympic
Sports Association
Based in Alberta, Canada this non-profit organisation has been aiding
disabled athletes for 36 years and offers programs and camps to
further the hopes and dreams of children and adults with a disability.
Australasian Support
Organisations
The Association
for Children with a Disability
Information, support and advocacy for families of children with
a disability.
The
Association of Genetic Support of Australasia
AGSA facilitates support for those affected directly or indirectly
by genetic conditions throughout New South Wales and Australasia.
The
Genetic Support Council WA
The Genetic Support Council Western Australia is a peak body for
genetic support groups in WA whose primary aim is to help them deliver
quality support and services to individuals and families affected
by genetic conditions.
New Zealand
Organisation for Rare Disorders
New Zealand's central starting point for information, support, diagnosis,
treatment and cure of rare and genetic diseases.
Pro Bono Australia
Pro Bono Australiais a small social purpose company working to provide not for profit organisations with the resources they need to run effectively. The Australian Directory of Not for Profit Organisations is now available on the website. It provides the contact details of the organisations, along with their mission statements and projects in progress. Pro Bono Australia provides a web-based news service discussing current issues in the not for profit sector. You can view articles online or subscribe directly to the news service. Pro Bono Australia also has listings of employment opportunities and events in the not for profit sector.
Self-Help Organisations
United Together (SHOUT)
Providing a multi-service resource centre to self-help and support
groups, and to individuals & families seeking to establish new
groups to meet their needs throughout the ACT.
Self-Help
Queensland
A not for profit community organisation comprising a network of
self help and support groups in Queensland.
Government Resources
NICAN
NICAN is information on recreation, tourism, sport and the arts
for people with disabilities.
Student
Wellbeing
Designed by the Victorian State Government this website addresses
student welfare including disability issues and classroom equity
issues.
Siblings Australia
Siblings Australia was originally established in 1999, as the Sibling
Project, within the Department of Psychological Medicine at the
Women’s and Children’s Hospital, in Adelaide. Its primary
aim is to develop and co-ordinate services for families, and in
particular, brothers and sisters of children with special needs
(disability or chronic illness).
Rural Health Information
National
Rural Health Alliance
The National Rural Health Alliance is the peak body working to improve
the health of Australians in rural and remote areas. It is comprised
of 24 Member Bodies, representing both health consumers and service
providers in non-metropolitan areas.
Rural
and Regional Health and Aged Care Services
The Rural & Regional Health & Aged Care Services Division
is responsible for the full range of health and aged care services
in rural and regional Victoria.
Rural Health
Rural health information for consumers, particularly those wishing
to undertake rural health studies.
Carer Resources
CarerLinks
North - Commonwealth Carer Respite Centre
CarerLinks North provides a range of servicesto carers of people
who are aged, disabled or chronically ill.
Carers
Respite Centre Southern Region
The Commonwealth Carers Respite Centre Southern Metropolitan Region
recognises the significant role carers perform in society. It aims
to support carers and to improve services in partnership with carers,
service providers and the community.
Carers
Australia
The website for the National section of Carers Australia providing
advocacy, support and information for carers. Carers Victoria can
be found at http://www.carersvic.org.au/index.htm
.
Ozcarers
Support and resources for Australian Carers. This site includes
a chat room where carers can discuss relevent topics and share experiences.
Respite
West
Information and respite services in Melbourne's west.
Grief and Sorrow
The Dougy Centre
Resources, information and links to help people dealing with the
loss of a child or adolescent.
Fundraising, Philanthropy and Grant Information
Fundraising
Ideas Australia
All the information you need to run your own fundraising activity...
This site provides you with an enormous amount of free fundraising
ideas, as well as a very comprehensive section listing fundraising
companies with great fund raising products. All of them offer you
fundraisers with proven track records of success.
ourcommunity.com.au
- Easy Grants
Provides community, education and non-profit groups with funding
advice, online donations service and a newsletter containing information
on current funding opportunities.
Philanthropy
Australia
Philanthropy Australia is the national Association which represents
Australia's leading grantmaking Private, Family, Corporate and Community
Trusts and Foundations. Here you can find information on what Philanthropy
Australia is, a list of members and news of their activities.
Research Institutes
Murdoch Childrens
Research Institute
The Murdoch Childrens Research Institute is a globally competitive
research institute with a unique focus on the health of babies,
children and adolescents. Our research covers asthma, childhood
cancers, diabetes, infection, genetic diseases, nerve, muscle and
bone disorders and adolescent health issues.
National
Centre For Biotechnology Information
The Online Mendelien Inheritence in Man (OMIM) project home page.
This page has a database of human genes and genetic conditions as
well as links to other related sites.
Clinical Services and Resources
Genetic
Health Services Victoria
Genetic Health Services Victoria provides people with specialists
able to diagnose and help patients with rare genetic diseases.
Download the Clinical Genetics Services Brochure "Some Frequently Asked Questions"
Lab Tests Online
Lab Tests Online is a new website developed by the Australasian Association of Clinical Biochemists with support from the Royal College of Pathologist of Australasia. The website aims to provide people with accurate, understandable information on pathology tests and is based on similar site in the USA and United Kingdom.
Educational Sites
Australian Association
of Special Education
The Australian Association of Special Education Inc (AASE) is a
broad-based non-categorial association concerned with all who have
special education needs.
Genetics
Education and Health Research Resource Page
Educational resources for schools, tertiary students and the general
public, provided by the Genetics Education Unit (GSNV's next-door-neighbours!)
at the Murdoch Children's Research Institute, Victoria.
NSW Genetics
Education Program
The centre for Genetics Education has resources for individuals,
families, service providers and professionals affected by a genetic
condition.
Fun
Quilts 4 Kids
Quilts4Kids is an online group that makes quilts for Australian children with life-threatening or lifelong illnesses... which certainly covers a few genetic conditions! Children (or their parents) choose a theme and colours, and stitchers from around the world create patches for the theme, which are then stitched together into individualised quilts. If you know a child who might like a personalised quilt, visit the website to register - or just take a look at the lovely things being made. You could even sign up to sew a quilt yourself!
The Gesundheit
Institute
Patch Adams' Hospital - "Gesundheit was originally conceived
as an all-encompassing hospital that would offer free health care
with a smile. Over the years the concept has evolved into Gesundheit
being an institute for healing and for living life fully - having
symptoms are simply a ticket to this university life."
The
Humour Foundation
The Humour Foundation is a charity founded in 1997 by performer
JP Bell and general practitioner Dr Peter Spitzer to promote the
health benefits of laughter. The core project is The Clown Doctors,
bringing support, fun and laughter to hospital patients.
The Nobel e-Museum
The Nobel e-Museum is a great on line place to learn about some
of the great discoveries of nobel prize winners. There are some
interesting and fun games that will keep kids of all ages amused
for hours.
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