mission statement

about us | download our brochure (available in English and 10 other community languages)

Vision:	Overcoming genetic challenges.
Mission:	To facilitate an information, support and advocacy network that empowers people to identify and / or overcome genetic challenges.

To fulfil our mission we will provide:

Provide a point of reference, information and referral to support groups and community resources, for families and individuals with a genetic condition.
Facilitate an exchange of information, resources and assistance in order to support existing genetic support groups and aid in the development of new groups.
Link groups for the purpose of transferring information.
Provide information in a variety of formats e.g. website, newsletters, phone contact, being involved with other groups.
Provide good information on time, in time, from the right people.

Provide a point of contact for families and individuals affected by a genetic condition to find the most appropriate support group.
Ensure individuals are supported in all areas including ongoing development.
Have appropriate support and information available immediately to people with a genetic condition and their parents/carers.
Support "specific issues/crusades" of support groups - mechanics of lobbying etc.
Provide support for support groups.
Assist new groups with set-up, incorporation, finances etc.

Empower people to act as community representatives.
Represent the interests and views of people and their families affected by a genetic condition to the community, State and Federal Government.
Provide "arms length" representation when needed.
Empower GSNV members and the general community.

Collaborate with professionals, peak bodies and government in order to ensure consumer participation in the quality and development of genetic services in Victoria.
Have representatives on all relevant committees and be approached for our expertise.

Ethical Debate