about us

mission statement | download our brochure

The Genetic Support Network Victoria is a vibrant and active organisation which aims to maintain a thriving network committed to promoting the interests and well-being of people affected by genetic conditions.

It was first established in 1996 as an unfunded, volunteer organisation and gained funding for staff in 1998. Since that time it has grown to include two part time Genetic Support staff, Leah Lonsdale and Catherine McLean.

The Network is proud to be associated with a wide range of support groups throughout Victoria as well as peak professional bodies such as Genetic Health Services Victoria.

The GSNV offers a range of services including information on genetic conditions, contact details for support groups, and even links between families with the same condition. We can point you towards your local community resources or give you links to the latest information on genetic hot topics.

The GSNV can also link up existing support groups to facilitate in the exchange of information and ideas or can even help in the establishment a new support group.

For further information on the range of information and services provided by GSNV click here.

The Network is proud to promote education, encourages communication and support and represents the views of individuals and families. We currently circulate a number of publications including our monthly news update. To view our current publications click here.

We hope that our role in the collaboration between individuals, families, professionals and genetic services, strives to enable all people with a genetic disorder living in Victoria have appropriate and accurate information and support for their disorder that empowers them to manage the challenges to their health and well-being.