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About GSNV
About GSNV
The Genetic Support Network Victoria (GSNV) is a vibrant and
active organisation committed to promoting the interests and
well-being of people affected by genetic conditions. The
Network is proud to be associated with a wide range of support
groups throughout Victoria and Australia as well as peak
professional bodies such as Victorian Clinical Genetics
Services.
Assisting individuals and families with the 'human', non
clinical side of genetic diagnosis is common place in our day to
day activity. The core of our enquiries involve assisting in
access to services, connecting with others, education,
advocacy, support and information.
The GSNV is uniquely positioned to bring together the various
types of information, service providers and support groups.
GSNV works to feed information out to the community and
to provide timely responses to requests for support.
Increasingly we look to help set up or support a new group and
assist those already established to broaden awareness. To this end
the GSNV is committed to improving the sense of isolation the
community may feel in dealing with genetic conditions.
For more information, please see our brochure.
Our History
The GSNV was set up in 1997 as part of a broader understanding
of genetic health and the need to bring clinical and support
services together.
In 1999 the GSNV held its first inaugural AGM and established a
mandate to provide support, information, education and advocy for
individuals and families affected by genetic conditions and
rare disease.
Acknowledgements
We are very grateful to our supporters, particularly the
Department of Health Victoria, the Murdoch Childrens Research
Institute and Victorian Clinical Genetics Services. We would also
like to acknowledge the generous donations from individuals,
membership subscriptions, and grants such as the Lord Mayor's
Fund.