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Welcome

 about us | mission statement | News 2007 | News 2006

Welcome to the GSNV web site! Please take a look around. If you cannot find what you are after, or if you notice that information on the site is out of date, please email Catherine to let us know. Happy surfing!

What's New at the GSNV?

3-4-2008

GSNV Special Projects Grants 2008

In 2001, GSNV was fortunate to receive a donation from the Multiple Epiphyseal Dysplasia support group.  These funds were made available to groups and individuals within our network to fund special projects.  The program was so successful we have continued it each year, with funds from donations and membership fees. This funding can be used for any once-off project that benefits people with genetic conditions.  Examples from past years include printing brochures, venue hire, event catering and library books.

Applications close Friday 11th April 2008.  Information and an application form can be downloaded here, or phone Leah on (03) 8341-6315 or email leah.lonsdale@gsnv.org.au . Apologies for the late notice - the Webmistress is still trying to catch up on the backlog...

Don't forget to RSVP for GSNV Family Day!

Family Day is only 10 days away (April 13th), which means there's only a couple of days left to RSVP! Don't forget to call Leah or Penny on (03) 8341-6315 or email leah.lonsdale@gsnv.org.au to reserve your piece of Train Cake!

Are you an aspiring artist?

Mark is a 21 year old artist, who is keen to share his passion for art by running drawing/sketching/cartooning classes for people in the genetics community.  If enough people are interested, he’ll organise some art classes (possibly either on a Wednesday or weekend).  This opportunity is open to people affected by genetic conditions, parents, siblings and anyone in the Genetics community. To register your interest, please contact Leah at GSNV on (03) 8341 6315 or leah.lonsdale@gsnv.org.au .

Williams Syndrome Research

Ever wondered about the day-to-day living skills and abilities of other adults with Williams syndrome? Researchers at the Royal Children’s Hospital are trying to find out more about this important topic because we know very little about the long-term adjustment and lifestyle needs of people with Williams syndrome.  To do this we need your help! We are inviting you to participate in a study looking at the thinking and lifestyle skills (e.g. domestic, leisure) of adolescents and adults with Williams syndrome. The project involves one attendance at the Royal Children’s Hospital, where you will meet a genetics doctor and a psychologist. For more information, please contact Ms Annette Da Costa on (03) 9345 5390 or Professor Agnes Bankier on (03) 8344 6261.

Summer Heights High: What are your dreams, hopes and challenges for 2008?

Danny, 18, plays Toby from the hit ABC TV series Summer Heights High. Danny recently received one of the highest honours in Hobsons Bay, the city's Young Citizens of the Year, in recognition of being a shining and `inspiring’ example to others.    

“A student with Down syndrome, Danny is part of the council's Be Yourself program; a recreational-based support program for young people with mild to moderate disabilities,'' Hobsons Bay Mayor Bill Baarini as reported in the Maribyrnong Leader in Wednesday February 6. “Danny's involvement in Summer Heights High is an inspiring example of how anyone can follow their dream, regardless of a disability.'' See http://www.hobsonsbayleader.com.au/article/2008/01/28/28408_wtv_news.html for the complete story.

18-3-2008

Have you missed us?

We've missed you too.... Unfortunately, due to server problems, we've been offline since Christmas. We're slowly catching up on a backlog of things that need to be added to the website, starting with our exciting Family Day (coming up on April 13 with a train theme). We apologise for any events we've missed during this time. Over the next few weeks, we'll be bringing ourselves up to date, but it may take a little while.

There have been visitors to this site since 22 May, 2006